Many With Breast Cancer Unnecessarily Choose Double Mastectomy: Study

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Removing healthy breast is unlikely to extend survival, but some doctors don't mention this, researchers say



Thu Jan 26, 2017 12:21 AM

I had rt breast ca in 2009. After lumpectomy, I received radiation and was prescribed letrezole, which I continue to take daily. I had a mamogram and breast MRIs done yearly with no recurrance found and regular f/u with my very thorough oncologist. 

1 1/2 yrs later I chose to have a bilateral mastectomy. Pathology revealed a 10 cm lobular cancer in the opposite breast with "obvious chemo effect" (letrezole). This was never picked up on mammography or breast MRIs, on physical exam by the surgeon or oncologist, or seen at the time of surgery. 

There were comments making me feel I was "putting myself through alot" as I went through the process of preop physical, exams by the surgeon who would be doing the mastectomies and plastic surgeon, plus comments by relatives who had medical background.

Reading these articles about breast cancer patients having unnecessesary bilateral mastectomies makes me want to add a comment describing my history. I am concerned that surgeons and oncologists will more negatively influence their patients about this decision. Discussing the statistics in a neutral manner is a must, but ultimately, it should be left up to the patient.

Tue Feb 21, 2017 12:34 PM

Thank You Jonia1,  I had a bilateral mastectomies because I found out that my cousin had breast cancer and she later had to go back and had to have another mastectomy.  I did not want to go through chemo twice.  I could not believe I got breast cancer.  Where did it come from? My mother later told me I had a cousin that had breast cancer on my father's side.  I skipped mammogram thinking there was no breast cancer in our family. Wrong! Check both parents side concerning any medical problems.

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