Bartholin Gland

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Bartholin Gland

by Teddys_Mom on Fri Mar 23, 2007 12:00 AM

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I was diagnosed with Bartholin Gland cancer in Dec. 2006. It is an even rarer form of Vulvar cancer. Has anyone out there ever had it? I'm just trying to find a kindred soul.

Thanks.

RE: Bartholin Gland

by Jaxback on Mon Mar 26, 2007 12:00 AM

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On 3/23/2007 Teddys Mom wrote:

I was diagnosed with Bartholin Gland cancer in Dec. 2006. It is an even rarer form of Vulvar cancer. Has anyone out there ever had it? I'm just trying to find a kindred soul.

Thanks.


I was diagnosed with Stage IVa Bartholin's Gland cancer in March of 2005 and had a modified radical vulvectomy plus lymph nodes removed on both sides since it had spread to the nodes.  My prognosis was poor.  Recovery wasn't easy as I had a bacterial infection which delayed my radiation and chemo, but in June and July I went through daily radiation  (5 days a week) and cysplatin chemo once a week.  I did pretty good with that, but one week after it was over I ended up in hospital with cellulitis - very painful.  I must admit that it took a while to get my mind around the prognosis, but I had to keep in mind because our cancer is so rare the data that the prognosis is based on is very limited.  Once I decided that, I thought wouldn't I feel foolish if I gave up my plans and then I didn't die!  However, that was easier said then done.  I retired in Sept 2005, but I had some other health problems through December of that year and had no energy at all.  January 2006 saw me getting my energy back and feeling as if I could do the things I wanted to do and my scans were clear.  So I sold my condo in Northern Virginia, bought a condo on the beach in Mazatlan Mexico, shipped my furniture in February, packed the car and cats in March and headed to Mexico.  I took my time with the trip (one week) and arrived here on 1 April 2006.  We have a great hospital that accepts my Blue Cross, I have one of only 20 board certified gynecological oncologists in Mexico here and he talks to my  doctor in Virginia.  My  scans are still showing no active cancer and I am doing those things we always talk about doing such as writing, painting and just relaxing on the beach.  I reached two years without recurrence this month.  I think that you have to approach this cancer as just another problem you have to deal with in your life and don't let it take over.  It has made me more aware of the enjoyments in life and I've stopped exposing myself to the things that really irritate me (including people).  I've been strong enough  to deal with the death of my mother and my aunt.  I live alone here with three Siamese cats, but I have Vonage so I talk to my daughter and friends in the States whenever I want and have made a nice group of friends here.  Once you get through the surgery, chemo and radiation, it is imperative to start looking forward and not to get frustrated at how long it takes to get you energy back.  Hang in there and remember to enjoy each day for what it is.  If you have any  questions or just want to talk feel free to email me.  Saludos.  Jacki Partridge

 

RE: Bartholin Gland

by Teddys_Mom on Mon Mar 26, 2007 12:00 AM

Quote | Reply

 

On 3/26/2007 Jaxback wrote:

 

On 3/23/2007 Teddys Mom wrote:

I was diagnosed with Bartholin Gland cancer in Dec. 2006. It is an even rarer form of Vulvar cancer. Has anyone out there ever had it? I'm just trying to find a kindred soul.

Thanks.


I was diagnosed with Stage IVa Bartholin's Gland cancer in March of 2005 and had a modified radical vulvectomy plus lymph nodes removed on both sides since it had spread to the nodes.  My prognosis was poor.  Recovery wasn't easy as I had a bacterial infection which delayed my radiation and chemo, but in June and July I went through daily radiation  (5 days a week) and cysplatin chemo once a week.  I did pretty good with that, but one week after it was over I ended up in hospital with cellulitis - very painful.  I must admit that it took a while to get my mind around the prognosis, but I had to keep in mind because our cancer is so rare the data that the prognosis is based on is very limited.  Once I decided that, I thought wouldn't I feel foolish if I gave up my plans and then I didn't die!  However, that was easier said then done.  I retired in Sept 2005, but I had some other health problems through December of that year and had no energy at all.  January 2006 saw me getting my energy back and feeling as if I could do the things I wanted to do and my scans were clear.  So I sold my condo in Northern Virginia, bought a condo on the beach in Mazatlan Mexico, shipped my furniture in February, packed the car and cats in March and headed to Mexico.  I took my time with the trip (one week) and arrived here on 1 April 2006.  We have a great hospital that accepts my Blue Cross, I have one of only 20 board certified gynecological oncologists in Mexico here and he talks to my  doctor in Virginia.  My  scans are still showing no active cancer and I am doing those things we always talk about doing such as writing, painting and just relaxing on the beach.  I reached two years without recurrence this month.  I think that you have to approach this cancer as just another problem you have to deal with in your life and don't let it take over.  It has made me more aware of the enjoyments in life and I've stopped exposing myself to the things that really irritate me (including people).  I've been strong enough  to deal with the death of my mother and my aunt.  I live alone here with three Siamese cats, but I have Vonage so I talk to my daughter and friends in the States whenever I want and have made a nice group of friends here.  Once you get through the surgery, chemo and radiation, it is imperative to start looking forward and not to get frustrated at how long it takes to get you energy back.  Hang in there and remember to enjoy each day for what it is.  If you have any  questions or just want to talk feel free to email me.  Saludos.  Jacki Partridge

Jacki,

Thank you so much for replying. I was beginning to think I was all alone in my diagnosis. My cancer was State III. I had a modified radical vulvectomy and left groin lymph node disection on Jan. 31, 2007. The report on the lymph nodes showed one of the six they took out completely engulfed with cancer. Now I am having radiation treatments 5 days a week for 5 and 1/2 weeks. Had a bout of naseau the first week but now take compazine one hour before treatment and that works. I have other side effects I'm dealing with too, like my vaginal area is itching like crazy. I still cannot wear panties comfortably. I bought some really comfy stretch skirts and I wear those everyday. Of course, when I go out I suffer with panties but I pay for it when I get home.

I am lucky as it could have been much worse. Also, my husband and I own our business and I do all the accounting and such. I have an office at home so that is where I have been working since the surgery.

I am happy for you that you have made it through the 2 years with no recurrence. That is what I am hoping and praying for as well. Congratulations on your move to Mexico, it sounds so great to be right on the beach, and doing the things you love to do.

Since I am only 53 it will be awhile before I retire. The recuperation period for the surgery actually made me miss work a little bit. Our business is seasonal, snow skiing in Colorado and Utah, so our season is winding down. After I finish my radiation treatments we have planned our summer with vacations alone and with family. It should be a good summer.

I am looking up and looking forward to my life ahead of me. Thanks again so much for writing to me.

Take Care, CeCe McGinnis, Kansas City 

 

 


 

RE: Bartholin Gland

by Cheech on Mon Mar 26, 2007 12:00 AM

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Your messages are really inspiring! Thank you. Although I don't have the same type of cancer, I have similar treatments and side effects. I finished radiation 2 weeks ago and I'm still on pain meds for the burning and itching. It helps. I've tried a variety of treatments including gel sheets (Gel Magic) the nurse sent and now I'm also using 99% aloe vera gel I bought at the health food store. The gel sheets have to be cut to size. I keep them in the bathroom with an ice pack and covered with a towel to keep it from thawing too quickly. Because of the location of the burn (vulva and vagina) it would be pretty hard to use the leaf of an aloe vera plant. Chris

RE: Bartholin Gland

by Teddys_Mom on Tue Mar 27, 2007 12:00 AM

Quote | Reply

 

On 3/26/2007 Cheech wrote:

Your messages are really inspiring! Thank you. Although I don't have the same type of cancer, I have similar treatments and side effects. I finished radiation 2 weeks ago and I'm still on pain meds for the burning and itching. It helps. I've tried a variety of treatments including gel sheets (Gel Magic) the nurse sent and now I'm also using 99% aloe vera gel I bought at the health food store. The gel sheets have to be cut to size. I keep them in the bathroom with an ice pack and covered with a towel to keep it from thawing too quickly. Because of the location of the burn (vulva and vagina) it would be pretty hard to use the leaf of an aloe vera plant. Chris

 

RE: Bartholin Gland

by Teddys_Mom on Tue Mar 27, 2007 12:00 AM

Quote | Reply

 

On 3/27/2007 Teddys Mom wrote:

 

On 3/26/2007 Cheech wrote:

Your messages are really inspiring! Thank you. Although I don't have the same type of cancer, I have similar treatments and side effects. I finished radiation 2 weeks ago and I'm still on pain meds for the burning and itching. It helps. I've tried a variety of treatments including gel sheets (Gel Magic) the nurse sent and now I'm also using 99% aloe vera gel I bought at the health food store. The gel sheets have to be cut to size. I keep them in the bathroom with an ice pack and covered with a towel to keep it from thawing too quickly. Because of the location of the burn (vulva and vagina) it would be pretty hard to use the leaf of an aloe vera plant. Chris

Chris,

I'm sorry to hear that you are still suffering even 2 weeks later. Bummer! Last night I upped my pain meds from 1-2 pills every 4 hours (says 1-2 on the bottle, and I was only taking 1 at a time) and I sat in the bath until they took hold, about 40 minutes. That helps a lot. So, this morning I've followed the same pattern and it really is working, hurrah! I guess I just have to resign myself to being on the pain meds until the pain is gone, who knew?

I am interested in the gel sheets you mentioned. Do you know where I could get some? I'm thinking that perhaps I could use one somehow when I do go out and about.

I had a beautiful, huge aloe vera plant that I had tended for years. Well, last summer I put it outside and kind of forgot about it. I ended up with just a couple of shoots worth saving. I did use a couple of the shoots last night and this morning, it really seems to help. But my plant only has a couple more good ones left on it.  I'll go to the health food store & get the good stuff you mentioned.

Thanks for writing and keep me informed of your progess. CeCe

 

 


 

RE: Bartholin Gland

by Deeogeefan on Tue Jun 26, 2007 12:00 AM

Quote | Reply

 

On 3/23/2007 Teddys Mom wrote:

I was diagnosed with Bartholin Gland cancer in Dec. 2006. It is an even rarer form of Vulvar cancer. Has anyone out there ever had it? I'm just trying to find a kindred soul.

Thanks.


 

Hi,

I've just been diagnosed with cancer of the Bartholin Gland, don't really know what to expect and would appreciate any feed-back.

So far the plan of attack is both radiation and chemo... starting real soon.

This whole situation has come as quite a shock.... went in for a smear Friday before last and came out with a biopsey (SP?).  Not good. Still really realing from that.  Any  how any advice is more than welcome.

Thank you,

Carrollee 

RE: Bartholin Gland

by Tootie2 on Fri Jul 06, 2007 12:00 AM

Quote | Reply
I have been diagnosed with a Bartholin cyst. I did warm soaks and sitz baths. But its back and larger. The doctor says its normal. But everthing I read and googled sends me to cancer websites. How did yours start? Could you please describe. I wan t to g for a second opinion. I have never experienced this before, After reading from different websites I am truly scepticle of my doctors advise. I am praying for all of us those who have been diagnosed and those of us who hasn't. She did tell me it may come back but not larger and hanging like testicles. I am trying to figure out if I am on the right track or my doctor because this time the color has changed. I am scared.

RE: Bartholin Gland

by Teddys_Mom on Mon Jul 09, 2007 12:00 AM

Quote | Reply

 

On 6/26/2007 Deeogeefan wrote:

 

On 3/23/2007 Teddys Mom wrote:

I was diagnosed with Bartholin Gland cancer in Dec. 2006. It is an even rarer form of Vulvar cancer. Has anyone out there ever had it? I'm just trying to find a kindred soul.

Thanks.


Carrollee,

Sorry to hear that you have Batholin Gland cancer. Mine was diagnosed in Dec. 2006. I had a modified radical vulvectomy with left groin node dissection on Jan. 31, 2007. I was in the hospital for 5 1/2 days. I felt pretty good when I got home as long as I stayed on the pain pills regularly.

I got the biopsy report on the groin nodes the following week. I had one out of six that was completely cancerous, so my gyn onc wanted me to have radiation. It was totally my choice at that point so I went and talked to the radiation oncologist and he explained all my options and answered all of my questions. He is a super doc and he said that with the radiation I would have a 95% chance at a cure. So, I had the radiation. I stared the second week of March and finished 16th of April. It was difficult but I believe it will be worth it. At least I know I did everything I could to get rid of the cancer.

I will see my gyn onc every 3 mos. for 2 years and then less frequently, probably every 6 mos. for the remaining 3 years. At 5 years, with no recurrence they deem you cured.

If you have more questions feel free to respond.

Good Luck, CeCe

Hi,

I've just been diagnosed with cancer of the Bartholin Gland, don't really know what to expect and would appreciate any feed-back.

So far the plan of attack is both radiation and chemo... starting real soon.

This whole situation has come as quite a shock.... went in for a smear Friday before last and came out with a biopsey (SP?).  Not good. Still really realing from that.  Any  how any advice is more than welcome.

Thank you,

Carrollee 


 

RE: Bartholin Gland

by Teddys_Mom on Mon Jul 09, 2007 12:00 AM

Quote | Reply

 

On 7/6/2007 Tootie2 wrote:

I have been diagnosed with a Bartholin cyst. I did warm soaks and sitz baths. But its back and larger. The doctor says its normal. But everthing I read and googled sends me to cancer websites. How did yours start? Could you please describe. I wan t to g for a second opinion. I have never experienced this before, After reading from different websites I am truly scepticle of my doctors advise. I am praying for all of us those who have been diagnosed and those of us who hasn't. She did tell me it may come back but not larger and hanging like testicles. I am trying to figure out if I am on the right track or my doctor because this time the color has changed. I am scared.

It never hurts to get a second opinion. At least then you know you have done everything possible in treating the problem. In reading up on my cancer I have found out that bartholin gland cyst's seem to be pretty common so hopefully that's all your's is.

Good Luck, CeCe

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