Husband with Stage IV Glioblastoma

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Husband with Stage IV Glioblastoma

by Mollyny on Sat Mar 24, 2007 12:00 AM

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Hi.  I left a message a couple of weeks ago, and had so many loving responses.  We changed our plans and he is now doing chemo/radiation, Temodar, here at home, and then we plan to go to Sloan Kettering after this session for a second opinion/evaluation and see about any clinical trials there.  Has anyone gone there on this board, do you know about any clinical trials and/or had any done there?  Of course, PRAYER is top on our priority list.  I never realized how hard it was going to be on you, the spouse.  I have my good days, bad days.  Yesterday, something else was the catalyst, but my anger over this situation came flying out, and I hit things, kicked things, threw things, yelled and screamed, and today I feel much better.  Do you all go through times like this?  I thought I would loose my mind.  You just bottle it up and keep going.  You have to.  I guess I needed a release.  Do we have a prayer chain on this board anywhere, as I would want to add all of you to my prayers each day, and would love to have my husband added to yours.  Does insurances usually pay for clinical trials, that was another question, and I know it goes by the type of insurance you have, though thankfully ours is suppose to be one of the best.  I have to check into that on Monday of course.  Thanks for letting me vent.    Molly

RE: Husband with Stage IV Glioblastoma

by Johns_Wife on Sat Mar 24, 2007 12:00 AM

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Hello Molly,

I certainly know anger.  I think we all do.  It took me almost a year of church, prayer and turning to my bible before some of the anger subsided.  Although I still have my moments, and so does my sweet husband John.  I am now studying about David in I Samuel and "Facing your Giants" by Max Lucado. A huge inspiration for me.  As far as prayer goes I think we all pray for each other here constantly.  I know I will add you to my prayers.  This website is such a blessing for me.  It's like therapy for my tired, aching soul and everyone here gives me respite, help, advice and internet shoulders to cry on.  So welcome warriors and never lose faith or hope.  I don't know about Sloan Kettering as my husband goes to U.C.S.F. but I'm sure you will get responses.  Thinking of you, Bobbie, John's Loving Wife, dx 5/05 gbm IV.

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