Adult Galio Blastoma Multi Forme

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Adult Glioblastoma Multi Forme

by Mikki on Sat May 22, 2004 12:00 AM

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My mother was diagnosed two weeks ago with this type of tumor at age 83 and had surgery and was presented with the option of radiation. She was all set to do this until the radiology oncologist was so brutally blunt (i.e., I suppose you've made all your arrangements, got your things in order) that she wanted to just cash it in and forget the radiation. It is of course her choice but if the radiation has tolerable side effects I am still hoping to buy all of us some more time together. Is this unrealistic or selfish on my part? If we had this done it will be at another hospital still using the Neuro Oncologist to oversee everything.

For, Laura How is Your Mom Doing?

by Linda_S_6 on Sat Jul 24, 2004 12:00 AM

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hi laura i hope i diden't upset you to much when you asked for information on glioblastomer because,your mom was diagnosed,there really aren't any good things about brain cancer, most people dont realize the added problems of a care giver helping a loved one, for one thing the brain as we know is where all of our thoughts are formed, a sick brain cant form the way it used to, a patient may say hurtful things they really dont mean, when the brain is effected loved ones change a calm and loving person may become aggressive and cruel not by choice but the brain can not process as it once did, when my loved one was diagnosed she began to change in a lot of ways she was never critical, never cruel,she may lash out at a loved one,then a few seconds later she would cry, i used to hug her and ask why she was crying her answer was "because i said something i dont mean and apoligize over and over, a few minutes later it would happen again followed by more apoligizes, the only reason i'm telling you this is because you may be confronted with simalar diatribes, please remember shes sick and dosen't mean it, my prayers are with all caregivers who have to deal with this nightmare, good luck to your mom and your family who are going through this, good luck and god bless you all.

Brutal

by Mrmarmot on Sat Apr 02, 2005 12:00 AM

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I'm a rececent GMT patient (surgery 3/4/05).We are all different w/ me being one who insisted on "book" estimate of survival AND mean time to tumor reoccurance. My doc was waaay cool giving me both but also making tthree other CRITICAL explanations (1 this is cancer and as such is full of surprises - good and bad, (2 drew and explined the "normal curve" and how it applies in this situation (keep in mind he insisted on this even though I am a school psychologist who has taught this at the Masters and Doctoral level classes) - he reminded me in particular to attend to BOTH tails of the curve!, 3) reminded me of my own family history (both parents with cancers but both also well over "normal" survival times. He then made it VERY clear that because of all these features the "norms" we simply invalid for my case. We therfore went forward planning for the worst (the norms might not only apply but I might be one over under the tail of the curve) with aggressive treatment(s) and financial and other "time sensitive affairs" dealt with quickly BUT to then move on with life ( though I fall under the right side of the tail longer term survival maybe one of the miracles). Subsequently we have found tha the tumor resection was exceptionally successful and that the wafer insert (FDA approved only recently) have completely invalidated all the established survival and mean time to tumor reoccuranc "norms" and probably moved usual survial timesfrom moths to years (DON'T assume cures, but significant improvement in surviva) This makes Quailty of Life an area of even greater importance. As a recovering alcoholic I've had the benefit of many years acquaintaince with ACCEPTANCE and (so far) have not experienced the difficulties with anger and fear which go with cancer. Reading/counseling in this area is highly recommended! keep in mind being caregiver is in many ways harder than being the patient (been there done that in both roles previously) BEST WAY TAKE CARE OF MOM IS TO BE SURE YOU TAKE CARE OF YOURSELF!!!!!! this is too long hang in there and open yourself to prayer
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