spot on lung

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spot on lung

by johnsonly1 on Tue Jun 27, 2017 06:32 PM

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wrote earlier but guess I did something wrong..can't find it. My husband is 2 years out from completion of his treatment for SCC with unknown primary. Recently he started having trouble with shortness of breath, he also has a blood clotting disorder - so a ct was done yesterday. It's not a blood clot - we were told he has a spot on his lung and that the results will be sent to his onogologist. What are the chances of this being a spread of his cancer??? His last PET scan a year ago was clean. This spot did not show up on a ct scan from 6 months ago. I am scared to death. 

RE: spot on lung

by jdrusso01 on Thu Jun 29, 2017 04:59 PM

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Don't be scared till you Know for sure... it's probably a nodual that they'll watch to see if it's growing.. If it does appear to be growing have it removed..

John... Good luck

RE: spot on lung

by Ranger479 on Thu Jun 29, 2017 11:27 PM

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Let's see.  I have been doing this since 2009.  And I had no cancer in my lung then.  My body beat it out of my lungs BEFORE I was diagnosed.  But the cancer they found was undoubtedly lung cancer.  It was in my adrenal gland, go figure.  I had to fight the residual effects since they are just as deadly.  Opdivo has has been my blessing.  Before it was done, nothing they had worked anymore.  I had to wait 6 months for the FDA and it still took 18 months every 2 weeks for it to work.  I was on the edge.  In between I did take surgery, radiation, chemo, another surgery, oh yeah- chemo should help.

But, It can work!. I kinda like it.  I am in remission and now I am wondering why Bristol Myers Squibb wants so much to pay my deductible.  Why can't we let this out free upon this world.  It works for those that it works for but they squeeze too much out as the price.  And no guarantee, should refund if it doesn't work.

Just saying......

RE: spot on lung

by Sdurnell on Fri Jun 30, 2017 06:56 AM

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John's,

It's possible that this is a met, but it could also be any of a number of other things.  As another poster said, don't make it bigger than it is.  Wait until you know for sure what you are dealing with, and then put your energy into making a plan for it.  

And even if your fears do come to pass, there are things that can be done.  New immunotherapy drugs have been approved for metastic or recurrent H&N cancers that have previously been treated with platinum-based chemo.  

For now, focus on what you need to do and make plans for that.  Find things to do to keep you busy and keep your mind occupied so you don't magnify this out of proportion.  

Best of luck to you both.

Susan

RE: spot on lung

by vickij on Sat Jul 01, 2017 07:53 PM

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Hi there.  Just read your post and I have to agree with Susan about not worrying until you know for sure.  Just remember that your husband is right on top of his treatment and even if it is SCC, it could not have been there very long because he has had the recent scans.  I'm in the same boat that you are in that my husband was also diagnosed with SCC in January 2016.  He had surgery with 6 weeks of radiation as follow up. We go every 3 months for the checkups and scans and I am anxiety ridden every time that day rolls around.  It's a very scary journey but I'm just thankful that if something does show up, we can rest assured that it hasnt been there very long.  Try to keep a positive outlook for your sake as well as your husbands.  I wish him nothing but good results and good health. 

RE: spot on lung

by Slowlane on Mon Jul 17, 2017 01:45 PM

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They found a spot on my lung 2 1/2 yrs ago.  Biopseyed it and said it was a met from H&N cancer in 2010.

First the Pulmo Doc took a shot at going down my throat and could not get to it.  Then, the local lung Doc wanted to carve out half my lung the next morning.

Thank God my little Indian Doc (radioloigist) just blurted out "I can shoot that thing with 5 bursts of radiation and give you a 78% chance of killing it".  The proceedure is called SBRT and I feel better now than I have in years.  Slowlane

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