GBM 4 - Headache Pain Suppression

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GBM 4 - Headache Pain Suppression

by andrew76092 on Sat Jul 01, 2017 12:31 AM

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Hello everyone!

I had a GBM4 resection on May 28, 2017 and started radiation and chemo this past Tuesday (today is day 4).  I'm still having headaches, long lasting and dull...the kind where they are just simply bothersome.  That said, I have a few questions I'm hoping to answer:

(1) Do narcotic meds help or make it worse?  I'm talking hydrocondone, oxy, fentanyl, etc.  My NO nurse said taking these opiate based meds actually make the pain worse.

(2) Is my only releif of pain going to be the steroids they had me on in the hospital?  The steroids that most people complain about, I'm sorry, I can't recall the name.  FWIW, I'm not taking any steroids at the moment but the doctor suggested I do if and when I get headache pain.

Any information about alternate (BUT STRONG) pain meds would be helpful.  I'm sick and tired of dealing with this headache!

Thanks in advance!

RE: GBM 4 - Headache Pain Suppression

by Dodgerblue on Mon Jul 03, 2017 02:00 PM

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  It sounds like steriods would be the better option vs. Opiads.  While steriods do have side effects, the risks of addiction with strong opiads pale in comparison.

Dodger

RE: GBM 4 - Headache Pain Suppression

by ottoh on Mon Jul 03, 2017 04:22 PM

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My wife used steriods after surgery along with tylonol. She used hydrocodone only when the pain was bad and now not at all. When you go on the steriods, you have to taper off slowly, and should not just stop or only use when you have pain. The radiation will give you some inflamation and drinking a tea made from Tumeric, ginger, lemon,and cinnamon, will help with the swelling as well as other health bennifits. The tylonol should help with the dull pain and at some point, you won't need them but every now and then. Your pain will slowly go away as your strenght returns. Stay happy and enjoy your life. Best of luck.

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