Double vision 9 years out

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Double vision 9 years out

by ErthWlkr on Mon Jul 17, 2017 04:08 PM

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Hi Folks - Have been off the board for a while wandering the highways and byways. But a problem has developed and I have my concerns and suspicions.
I'm 9 years out from radiation/chemo for sphenoid sinus cancer. Took quite a beating from treatment but made my way back. Side effects were present from treatment but finally plateaued out in recover at about the 5 year mark.
Suddenly, about a year ago, I started having periodic double vision. It was a bit of deja vu since this was the first - and only - symptom I had with the tumor sitting on the 6th cranial nerve. But after a visit to my oncologis and my ENT doc, and after a scope and a PET scan, no new growths found. Inflammation was present but that's an ongoing problem for me.
After a few months, with the problem worsening slightly, I went to see an ophthalmologist. After spending a total of 4 hours in his office with both him and an associate, going thru many exams, and after reading the results of the PET, he could offer no other explanation other than "latent radiation damage".
Now about 6 months since my visit with him and the problem is still there and worsening. We agreed on a followup but I'm not satisfied with the latent radiation damage diagnosis - that only tells me what might be the cause but not what is actually happening.
I'm curious if anyone here has had a similar issue. I'm tempted to agree with the diagnosis but I don't necessarily believe that nothing can be done. And I'm concerned that my vision will continue to worsen as it has been doing.
All help and guidance is always welcome. Thank you all for your continued help and support for all!

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