Dilated Common Bile Duct - still seeking DX

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Dilated Common Bile Duct - still seeking DX

by KatherineD on Mon Jul 17, 2017 08:40 PM

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I went in to my internist 1-2 weeks ago, for other reasons, and mentioned I had early fullness when I ate and recent weight loss. He was very proactive and ordered ultrasound scans of pelvis and abdomen, and a lung X-ray. I am 61 yrs. Ultrasound Sound came back showing all was well except - common bile duct in pancreas area was dilated 1cm (10mm), past normal parameters. CT scan with contrast ordered. Results confirmed same dialated common bile duct at 10mm, but no signs of gallstones, gall bladder disease or tumors. I am now set up for MRCP (MRI with contrast of pancreas) on Friday. Dr. Says this level of dilation must be explained. Perhaps I passed gallstones and didn't know? Perhaps something else? I am reading that bile duct cancer often does not show up on scans. Would sure like to hear others' experiences. Not sure how hard to push ahead & whether to see an expert yet for an opinion. My Internist has only seen dilation like this in cancer or with active gallstones. Thanks!

RE: Dilated Common Bile Duct - still seeking DX

by katos on Sun Jul 23, 2017 12:48 AM

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Hi, I am a bile duct cancer survivor.   you must take care of this.  The ercp will show if it is cancer.  If you catch it early you will survive. I had a whipple  and have been cancer free since 2010.  Its not easy but it is survivable.  Go to the best doctor you can find who has done the most whipples.  God bless.

 

RE: Dilated Common Bile Duct - still seeking DX

by Katrina12 on Mon Feb 19, 2018 09:17 PM

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I make rare visits online on this Board so I just saw your entry.  I hope that you pursued this with vigor (to say the least).  I see every test but a PET scan that lights up an area with active cancer (low level or high level).  Some people's blood tested show out of range high numbers.  I think under 35 is top okay.  They call it a CA19-9 Tumor Blood Marker test.  I don't understand "Bile duct cancer does not show up on scans."  I am a very long term survivor with on and off treatments.  I hope all is ok to date and that you find a highly experienced Bile Duct Cancer who sees and treats (or does surgery on) this potential Cholangiocarcinoma.  This is not time to let regular doctors call the shots who don't know this cancer very well.  I'm no doctor but my success has been based on moving fast, doing research on my own, getting best docs with this specialty.  Wherever they are.  

RE: Dilated Common Bile Duct - still seeking DX

by Katrina12 on Mon Feb 19, 2018 09:17 PM

Quote | Reply

I make rare visits online on this Board so I just saw your entry.  I hope that you pursued this with vigor (to say the least).  I see every test but a PET scan that lights up an area with active cancer (low level or high level).  Some people's blood tested show out of range high numbers.  I think under 35 is top okay.  They call it a CA19-9 Tumor Blood Marker test.  I don't understand "Bile duct cancer does not show up on scans."  I am a very long term survivor with on and off treatments.  I hope all is ok to date and that you find a highly experienced Bile Duct Cancer who sees and treats (or does surgery on) this potential Cholangiocarcinoma.  This is not time to let regular doctors call the shots who don't know this cancer very well.  I'm no doctor but my success has been based on moving fast, doing research on my own, getting best docs with this specialty.  Wherever they are.  

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