Glioblastoma iv

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Glioblastoma iv

by Sharon on Tue Sep 21, 2004 12:00 AM

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My mom has been diagnosed with Glioblastmma IV and has had surgery to remove a large portion of the main tumor. She has not however started radiation treatment due to our past experience with cancer (my brother died at the age of 29 from cancer and he did have the radiation & chemo treatments which only made his quality of life very poor). We have met with a doctor that practices alternative medicine and have started her on the daily shakes to improve her immune system. What I need to know is if anyone else out there has opted for this way of treating this type of cancer and what were the results all the way thru the process. Please talk back.

Glioblastoma IV

by Lindal on Mon Oct 25, 2004 12:00 AM

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Sharon, My father has also just be diagnosed with same. His however, is inoperable. He will be starting treatment this week. Without treatment, he was given only one month. With treatment, he may have between 3-6 months. Sorry, I don't know of any alternative medical treatments. Hopefully someone out there can help you. Just wanted to tell you to hang in there and cherish every good day.

Gbm iv

by Andrea_b_1 on Sat Oct 30, 2004 12:00 AM

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Hi... My friend was just diagnosed and had tumor removed a few days ago. We are researching options and although I don't know anyone who has personally been...there is a very promising looking hospital in Mexico called The Oasis of Hope. They treat all types of cancer with conventional and alternative treatments. Their success rates are higher than typical. With God NOTHING is impossible! Andrea

Gbm 4

by Rosemarie_B on Sun Oct 31, 2004 12:00 AM

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Been a long learning experience this cancer. My wife has a GBM 4 and had surgery in April 03 and done radiation and did Temodar every month and had lots of problems she has had a blood transfusion and needs platelets added to and her WBC & RBC was off to so she did not get any Chemotherapy in October. She started again on the 8th of November and has done well so far, they put her back to 200 Mg now of the Temodar and her last blood count was fine so we will see if it works this time. I guess they have to start you out high on Temodar and work down, her last MRI was august 28th and it showed the tumor did not grow at all so we keep hoping. She did a MRI on oct. 20th, 03 and one in Dec 10, 03 and the tumor was back but not growing yet, how long can you stay on Temodar to keep this down we don’t know. Her GBM is a grade 4 and they can’t believe this just quit growing is this unusual for this? She is feeling real good these days and has got back to sewing to. She and Patricia (our daughter) have been doing sewing classes and they are having a great time together. Patricia works nights and week ends at a store here not good pay but gets her out and sees people not just locked up in the house. So some one is here all the time with Rosie. It has been wonderful to have Patricia home with Rose I think it has made a big difference in Rose. I know it took a lot on pat’s part to give up her life for now in Colorado but she will go back some day. Rose did a MRI on Friday the 5th, 04 and went to see the Neurosurgeon that did her surgeries. He said that there is not much he can do now. The tumor is back and we see trouble with her now. They just said go home and we can not help you. We found a place in Denver, Co that is just a brain tumor place and took Rose out there. They started her on Paclitaxel and Vinorelbine the first MRI showed the tumor was shrinking and she feels just great so her and Patricia live out there now and rose has six weeks on and then two off so she can come home some times. The people out in Colorado said she should not be on all the Naturopathic Medicine that they gave her as it feeds the tumor and will keep it growing. They did six weeks and the MRI showed the tumor has shrunk and she feels good for now. She just stared on biological therapy phase in which they will take the drug tamoxifen in high doses plus or minus the drug thalidomide. These drugs are not chemotherapeutic agents, and as such, are not nearly as toxic. They are, however, agents which have been shown to have a beneficial effect on malignant brain tumors in such a way that the tumor will either stop growing or become more differentiated and therefore less likely to progress. We have had very encouraging results with this phase of therapy which has been well tolerated by our patients. Now we have a lot of hope as this has not been done in the last year so it looks good, I would like to thank the doctor and his staff for all they have done for my wife she has never felt this good from day one so what ever they do it has worked this far. She is out doing things that she never got to do before. My wife has been through a lot and I do have hope now that they will cure her. We have more hope every time we see her MRI as now there is hope and before they didn’t know what to do, also they should let people know that there are a lot of places out there that have new ideas and can help. Now I don’t know how lone we will have but she is back to a more normal life and that is a lot. Also we are at 18 months so far and counting. If any one asks me I would say the doctor did save my wife from a bad situation. Mike B.

Glioblastoma iv

by Romaine on Fri Jul 14, 2006 12:00 AM

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Hi, My best friend was diagnosed with glioblastoma IV in Oct 05 and has gone through radiotherapy and chemo-just completed 6 months. I was wondering if you can give me an update on the medication and treatment used for your wife thanks romaine

RE: Glioblastoma iv

by Paulyday on Thu Apr 26, 2007 12:00 AM

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If I had to do it over I would not burn my brain with high powered cancer causing radiation
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