Tongue cancer

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Tongue cancer

by Carolin on Tue Oct 10, 2017 04:25 PM

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How long are the affects of radiation?I am still very tired and sore throat

RE: Tongue cancer

by Diamond_David on Thu Oct 12, 2017 02:20 PM

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How far out are you?

I had tonsil cancer almost 10 years ago. I don't have sore throat what I have is dry mouth, less saliva, carry a water bottle around dry mouth at night.

For night I bought on Amazon

Ora Moist

tablet sticks to roof of mouth and makes it water.

I think my throat irritation went away after treatment in 90 days but of course everyone is different

RE: Tongue cancer

by MarinS on Thu Oct 12, 2017 06:57 PM

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It took me about 6-8 months to begin to feel better. I'm now almost a year post-treatment and I still have crummy taste buds and only slight pain (I'm thinking it's scar tissue or tight musculature, but certainly not pain from radiation burn any more) when I yawn. The fatigue, for me, lasted about 8 months or more and it wasn't until I started taking a multivitamin and eating fish (I was a vegetarian before) that I started to gain energy. Now I'm feeling quite well and have been back to working out on a regular basis. Hang in there. It WILL happen for you!

RE: Tongue cancer

by Carolin on Thu Oct 12, 2017 07:11 PM

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Thanks so much

RE: Tongue cancer

by Sdurnell on Thu Oct 12, 2017 07:40 PM

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Carolin,

Was your cancer considered head and neck SCC?  If so I had a similar radiation for a cancerous lymph node (no primary detected).

My fatigue took about a year to clear.  The sore throat didn't last very long, but the "burns" to the neck took longer.  And it was two years before most foods tasted right again.

Hang in there.  In my experience, 6+ years ago, the treatment is brutal, and the recovery is slow, but the "new normal" after a while is not bad at all.

Susan (on the head and neck board)

RE: Tongue cancer

by Carolin on Fri Oct 13, 2017 01:08 AM

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Thanks I had carcinoma of right side of tongue neck dissectionand removal of tumor also 30 rounds of radiation

RE: Tongue cancer

by Carolin on Fri Oct 13, 2017 01:11 AM

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I just don't have the support I need very depressed your post helped thanks so much

RE: Tongue cancer

by MarinS on Fri Oct 13, 2017 01:36 AM

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The treatment we must undergo for this type of cancer can be very traumatic and can lead to depression or severe anxiety. Does your hospital have specializing counselors available or maybe a support group? Another option might be a short course of anti-depressants. Even if none of these appeal to you, sharing your feelings here can be very helpful. Most of us really do get it and can offer advice and support.

RE: Tongue cancer

by Carolin on Fri Oct 13, 2017 02:23 AM

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I think there is a support group but my hospital is one hour away I think this has been very traumatic for me I had to get it out you have been so kind I just feel like I am on pins and needles with this illness.I hope to feel better mentally Also I lost my teeth and waiting for surgeon to give me the go ahead to get dentures I haven't had no outside communication for one I am not quit understandable and also I am not ready this group is my answer thanks for your kindness I needed to hear advise

RE: Tongue cancer

by MarinS on Fri Oct 13, 2017 08:29 PM

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Keep coming back here, Carolin, and posting about your experiences and your ups & downs. As I said, we all get it. You can also send a private message to me at any time by clicking below to make a private reply.

I'll bet when you get your dentures, you'll feel alot better, so hang in there!

Marin

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