Decided not to take Arimidex & Oncologist not happy

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Decided not to take Arimidex & Oncologist not happy

by Franne on Sat Oct 28, 2017 01:16 PM

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After my lumpectomy in May, 2017 and 2 re-exision surgeries, plust 21 radiation treatments, I decided that since my margins were clear, and no lymph nodes were positive, Stage 1 grade 2, er pos, pr pos, and her2neg, that I really don't want to risk the horrible side effects of putting anymore drugs into my body.  I had an unpleasant with the oncologist who prescribed it to me.  He thought I was not being fair by not taking it. I am so confused.  Can anyone share their experiences with the Arimidex?  I would truly appreciate any advice.

RE: Decided not to take Arimidex & Oncologist not happy

by Franne on Mon Nov 20, 2017 02:58 PM

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Thanks for the reply.  I have heard that the Oncologists do make money off the drugs they prescribe.  Pretty scarey, huh? I truly feel good about my decision and won't let myself be influenced to take something that I don't feel is safe.  And, thanks for the hero comment, but I really don't think of myself as a hero, just another person who is surviving cancer.  Please wish your Mom the best from me. And, thank you again for your comments.

RE: Decided not to take Arimidex & Oncologist not happy

by Friendinneed on Fri May 25, 2018 01:48 PM

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I totally disagree.  I have metastatic breast cancer HER2 positive and after my lumpectomy my oncologist put me on Arimidex every day along with faslodex injections once a month.  I received no chemo or radiation.  Two years later my latest  2 pet scans came out no sign of active cancer.  I feel this combination is saving my life.  I hope you pursued a different follow up to keep reoccurance down.  I also want to mention I am postmenepausal. I don't know if HER2Neg will have the same good outcome as I am having but please talk with your oncologiist again.  I only want everyone to live a long quality life despite this terrible disaese

RE: Decided not to take Arimidex & Oncologist not happy

by sleemapm on Thu Jun 07, 2018 03:28 PM

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On Oct 28, 2017 1:16 PM Franne wrote:

After my lumpectomy in May, 2017 and 2 re-exision surgeries, plust 21 radiation treatments, I decided that since my margins were clear, and no lymph nodes were positive, Stage 1 grade 2, er pos, pr pos, and her2neg, that I really don't want to risk the horrible side effects of putting anymore drugs into my body.  I had an unpleasant with the oncologist who prescribed it to me.  He thought I was not being fair by not taking it. I am so confused.  Can anyone share their experiences with the Arimidex?  I would truly appreciate any advice.

I had breast surgery, chemo and then six weeks of radiotherapy.  I was prescribed Arimidex and took it for almost a year before I has a three month rest from it.  Within a month of starting it again I was suffering all the same side effects. Lethergy, muscle pain, bone pain so bad I could no longer play with ny Grandchild. My fingers were so numb I coud no longer do any craft work at all.  After some serious thought I decided to stop taking the Arimidex. It was MY decision made for myself.  I told my family it was MY decision and I would not change my mind because I wanted to LIVE again.  I had been through enough and whatever time I had, be it long or short, I wanted to enjoy it.  I feel so, so much better today.  My husband only said last week that he was thrilled every time he heard me play with our Grandson and laugh again.  I am living now and that is what I want.  I have and will not have any regreats whatever life throws at me now.
So long as the decision to stop taking Arimidex is yours it is the correct decision.
Enjoy your life as a survivor and enjoy every day of it! 

RE: Decided not to take Arimidex & Oncologist not happy

by ToddlerFather on Sun Jun 10, 2018 03:21 AM

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Note that a decision to stop taking a med causing too much side effects is different from a decision to not even start taking it, which seems to be case if I understood correctly. 

I do support a decision to stop taking meds that clearly is generating more harm than good, but I don't support a decision to not even try. 

RE: Decided not to take Arimidex & Oncologist not happy

by DebbieMarler on Thu Jun 14, 2018 11:24 PM

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I had a double mastectomy. I didn't do chemo or the pills. I tried the pills but they messed up my depression medications and I was on the verge of being committed. I chose sanity over cure. It is very unpopular but my family totally support me so I just live and know it was my choice. I thought I might lose my oncologist but he kept me. He is sweet and tho his choice would be different he still gives me great care.

RE: Decided not to take Arimidex & Oncologist not happy

by Mowojo on Sun Jun 24, 2018 11:46 PM

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I have stage 0 DCIS  estrogen + 99%  and Progestone + 50 % and grade 3. I had a lumpectomy and 35 sessions of radiation. I did 3 months of Arimidex and felt awful with joint and bone pain, fatigue, and dizziness. I tried to stick it out, but then two fingers in my right hand froze up and I couldn't extend them, except manually. (Trigger fingers, I was told.) Now I'm off the med for 4 days and already feeling better. It is scary though.

I need to decide if its is worth trying another anastrozole or go with good nutrition, exercise, and hopefully luck. Any input is greatly appreciated!

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