Urachal Cancer (newly diagnosed)

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Urachal Cancer (newly diagnosed)

by MarksMom on Sat Nov 18, 2017 12:11 PM

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Our 39 year-old son, who was born with Williams Syndrome and mildly retarded, was just diagnosed with urachal cancer. He had surgery a week ago Friday, and we got the pathology report yesterday. He sees the nurse practicioner Monday to get the catheter removed and start with the first referral to the oncologist. I did give the urologist the name of the urologist so many of you have mentioned at M.D.Anders on and appreciate having this information. Right now all I know is that the tumor was positive for CK20, CDX2, 3 4 1 2 focal negative. I think that means it is adenocqrcinoma? What questions do I need to ask first? Thank you so much for your help.
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