Stage 4 Gallbladder Cancer..poss. last chance with immunotherapy

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Stage 4 Gallbladder Cancer..poss. last chance with immunotherapy

by JJ2017 on Sun Jan 14, 2018 06:44 AM

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Need imput please! We have been thru all the cycles with gem/cis, PET scan showed more growth, so onto a clinical trial, CT scan showed more growth. So we are now GB cancer with mets to liver (lower 4,5 and 6th quadrant), upper transferse colon, small area pushing on stomach...etc.

So the trial Dr mentioned that she is a canidate for immunotherapy due to having a genome study done. It showed a PD-1/PD-L1 gene that has responded to Keytruda and or Opdivo. So spend some time researching and somewhat made up our minds, then we get a call back from the Research RN and said there is a NEW TRIAL out for this gene. Hell, now what.....

Upon researching Keytruda we asked a few questions and 1 of the answer's sticks in my mind;

They said that Keytruda was an immune "enhancer" and that it DOES NOT attack/kill the PD-1 gene, but from the reading/research I have done know where does it say any differently.....???

The "new" immunotherapy trial is thru CytomX Therapeutics that would put her in the B1/or B2 group. Supposibly this will attack the PD-1/PD-L1 and slow or stop progression.Worrie d that this is the 1st time it has been tested on humans (according to the consent paperwork). Sure, we're all about helping out research, but for some reason this one bother's me.

This is all moving WAY TOO FAST, surgery was just in June of 2017.

So, if you or anyone you know have something similar, especially with the PD-1/PD-L1 gene and have started this study, done with it, have had treatments with Keytruda etc...PLEASE, PLEASE, PLEASE reach out with some possible insite. We are back to the Dr. on Tues....

Thank you so much, from truly the bottom of my heart.

My everything of 30 years needs our help

Blessings to each and everyone, take care of you and yours!

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