End Stage Pancreatic Cancer

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End Stage Pancreatic Cancer

by dolphin24va on Thu Jan 25, 2018 07:05 PM

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My dad was diagnosed with inoperable pancreatic cancer Nov 2016.  He went thru Chemo (which made him very ill and did not shrink the tumor that was wrapped around arteries & veins).  Then we took it upon ourselves to seek out proton therapy.  This was easier for him to tolerate.  Had a petscan right after the proton therapy and they couldnt get a clear reading of what was in the pancreas - Sept 2017.  They told us there was a small spot on his liver but too small to tell what it was.  He just had a pet scan Jan 10 and he now has 2 spots in the pacreas and 5 spots in the liver.  He has ascites since right after Thanksgiving, thinking he had eaten too much for the holidays.  I cant get direct answers but he has been offered chemo but told that it most likely wont help and could prolong his life only briefly and only if it worked.  In addition to the ascites, he went from diarrhea since diagnosis to now he cant really have a bowel movement.  He is also a heart patient (mechanical aortic valve).  They have a cruise scheduled for Feb 10th and as a daughter I am terrified for them to go that far but he is insistent on going.  Based on these symptoms, I feel like he has entered the end stage of this horrific disease.  I like some of the other posts, feel like other family members think he is ok because he is walking and talking and dont realize how sick my dad really is.  I'm scared of what is coming next and want to prepare myself as best as possible to know what to look for.  Any response is appreciated.

RE: End Stage Pancreatic Cancer

by patrigib on Thu Jan 25, 2018 07:57 PM

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I fully understand your concern and people around often understand how bad or difficult it is. partly because patients don't want to be only considered as sick, partly of denial and other stuff.

If your father wants to go, let him go. It's his feeling and maybe he needs some plans to go ahead.

Maybe take a good insurance and medical advice to feel at ease. I know it's really hard for the family, but even more for the patient.

Hugs

Pat

ps : French/ German mother tongue, opologies for mistakes

RE: End Stage Pancreatic Cancer

by The111thAngel on Mon Jan 29, 2018 06:19 PM

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Sorry you are going through this...

Like Pat said, if he wants to go, let him. It is his life to experience and if his energy levels are there, more power to him. I wish you all the best.

RE: End Stage Pancreatic Cancer

by fullmoonyy on Tue Feb 13, 2018 11:16 PM

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I'm sorry about what your father and your family is experiencing. From the symptoms that you described, they're very much similar to my mother's end stage symptoms. She passed away one year ago. My mother had ascites and then experienced liver failure, kidney and heart failure which caused the death. It took one-two months. We celebrated each day that we could and I missed her so much. He may go to unconcious anytime, so talk to him as much as you can and let him know that he's so much loved. God bless you and your family!

RE: End Stage Pancreatic Cancer

by PunkyD on Wed Feb 14, 2018 07:40 AM

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On Jan 25, 2018 7:05 PM dolphin24va wrote:

My dad was diagnosed with inoperable pancreatic cancer Nov 2016.  He went thru Chemo (which made him very ill and did not shrink the tumor that was wrapped around arteries & veins).  Then we took it upon ourselves to seek out proton therapy.  This was easier for him to tolerate.  Had a petscan right after the proton therapy and they couldnt get a clear reading of what was in the pancreas - Sept 2017.  They told us there was a small spot on his liver but too small to tell what it was.  He just had a pet scan Jan 10 and he now has 2 spots in the pacreas and 5 spots in the liver.  He has ascites since right after Thanksgiving, thinking he had eaten too much for the holidays.  I cant get direct answers but he has been offered chemo but told that it most likely wont help and could prolong his life only briefly and only if it worked.  In addition to the ascites, he went from diarrhea since diagnosis to now he cant really have a bowel movement.  He is also a heart patient (mechanical aortic valve).  They have a cruise scheduled for Feb 10th and as a daughter I am terrified for them to go that far but he is insistent on going.  Based on these symptoms, I feel like he has entered the end stage of this horrific disease.  I like some of the other posts, feel like other family members think he is ok because he is walking and talking and dont realize how sick my dad really is.  I'm scared of what is coming next and want to prepare myself as best as possible to know what to look for.  Any response is appreciated.

Dear Dolphin,

I am so sorry about your dad's diagnosis and suffering.  I lost my Mom to PC in 2013.  She also had ascites, which she had drained every so often to relieve the weight and discomfort. Is your father on the cruise? How is he since you last posted? 

Sending you strength.

Punky

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