chloroquine, cimetidine, verapamil, and metformin in GBM

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chloroquine, cimetidine, verapamil, and metformin in GBM

by apenrod on Sat Jan 27, 2018 07:11 PM

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Hi,

My name is Ashley. My mom was diagnosed with a stage 4 glioblastoma (unmethylated) on December 10th, 2017.  She is only 54. She had headaches for two weeks that worsened causing us to take her into the ED. She went into surgery the next day for a 4cm mass in her left parietal lobe. This disease as everyone know rocks your world I feel we are in an alter reality now.  I've been researching non stop what others are using and trying. I was curious if anyone has any experience using Chloroquine, cimetidine, verapamil and metformin for this disease. There are promising studies but was hoping for some personal accounts. Thank you.  It is truly inspiring to hear other people fighting this terrible fight and hopefully we will be able to beat the statistics.

RE: chloroquine, cimetidine, verapamil, and metformin in GBM

by Kvuk17 on Mon Jan 29, 2018 07:58 AM

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Hi! My son has the same diagnosis (he’s 11) and his tumour is also unmethalated. We use Chloroquine, metformin and cimetidine daily and have done for a couple of months now. He also uses cannabis oil too which I highly recommended. At the scan after Radiotherapy finished, the tumour had shrunk and showed signs of internal cell death. Your definitely doing the right thing, get your Mum on these meds as soon as you can and search “cocktail” on this forum and you should find a really interesting thread with a long term Survivor of GBM. I got my metformin from an online pharmacy (and told a few white lies), same for Chloroquine We use the one that’s trade name is “avlocor”. I have to order cimetidine on line in the form of “Tagamet” as we done seem to have it hear in the UK. I’m sending my prayers and best wishes for your Mum, let us know how you get on. Kirsty. X

RE: chloroquine, cimetidine, verapamil, and metformin in GBM

by apenrod on Mon Jan 29, 2018 04:05 PM

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Kirsty,

I'm so sorry to hear you are going through this with your son. Have you guys noticed any significant side effects from the meds?  Also are you using a CBD oil with THC or just he plain hemp oil?  I will look into that thread more. Thank you!

RE: chloroquine, cimetidine, verapamil, and metformin in GBM

by mohit1291 on Mon Jan 29, 2018 05:39 PM

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Hi, I’m extremely sorry to hear about this. As a matter of fact, my mother (54 yrs old) also got diagnosed with GBM grade 4 in August 2017 which turned out to be inoperable. I have detailed out the entire list of treatments and protocol we have given and are giving her till date. I strongly believe that natural supplements really help in boosting one’s immunity and helping the body to fight off tumor cells on its own. Hope the below list will help. All the best xx Conventional Treatment (Till Date) : Radiation : 30 days - Check Chemotherapy TMZ : 42 days (120 mg/day) - Check Adjuvant Chemo Cycle 1 : 5 days (240 mg/day) - Check Adjuvant Chemo Cycle 2 : 5 days (240 mg/day) - Check Adjuvant Chemo Cycle 3 : 5 days (240 mg/day) - Due next month Alternative Treatment (Till Date) : Dendritic Immunotherapy : 1st Infusion - Check Dendritic Immunotherapy : 2nd Infusion - Check Note : Tetanus Injection was given prior to every Infusion to boost immunity and activate immune cells in body. Valganciclovir dosage : 450mg x 4 / day (to fight off the CMV virus) - Ongoing Homeopathy protocol by Dr Prasanta Banerjee : Ruta 6, Calcerea Phos 3x/day - Ongoing Natural Supplements (Till Date) : IP6 & Inositol by “Cell Forte” : 2 capsules early Morning & 2 capsules Evening (Empty Stomach) - Total intake 3200 mg Curcubrain by “Now Foods” : 1 capsule early Morning, 1 capsule before lunch, 1 capsule before Dinner - Total intake 5000 mg (including organic turmeric in diet) AHCC by “Kinoko Gold” : 2 capsules before Lunch and 2 capsules before Dinner - Total intake 2000 mg Coriolus Versicolor by “Mushroom Science” : 2 capsules early morning and 2 capsules before Dinner - Total intake 2000 mg Boswellia Extract by “Now Foods” : 1 capsule after lunch and 1 capsule after dinner - Total intake 1000 mg Berberine by “We Like Vitamins” : 1 capsule after lunch and 1 capsules after dinner - Total intake 1800 mg Quercetin and Bromelain by “Now Foods” : 2 capsules before lunch and 1 capsule before Dinner - Total intake 3000 mg Goldenseal Root by “Nature’s Way” : 1 capsule after lunch and 1 capsule after dinner - Total intake 1200 mg Reishi Mushroom Extract by “Boostceuticals” : 2 capsules before breakfast and 2 capsules before Dinner - Total intake 1800 mg Maitake D Fraction pro by “Mushroom Wisdom” : 2 ml everyday Omega 3 fatty acids by “Nutrilite” - 2 capsules anytime during the day Grape Seed Extract by “GNC herbal plus” - 1 capsule anytime during the day Green tea Extract by “Life Extension” : 1 capsule anytime during the day Vitamin D3 by “Solgar” : 1 capsule anytime during the day Selenium by “Nature’s Way” : 1 capsule anytime during the day L-optizinc by “Now Foods” : 1 capsule anytime during the day Resveratrol by “Relentless Improvement” : 1 capsule anytime during the day CoQ10 by “aSquared Nutrition” : 2 capsules anytime during the day - Total intake 800 mg Milk Thistle by “Puritans Pride” : 2 capsules anytime during the day - Total intake 2000 mg Allopathy (Till Date) : Dexamethasone : 2 mg morning and 2 mg night (Maintenance Doze) Valproic Acid : 500 mg morning and 500 mg night (To avoid Seizures) Citadep : 1 tablet before sleeping (Anti-Depressant recommended) Chloroquin : 1 tablet of 250 mg after any meal (reduce side effects of chemo) Metformin : 500 mg during lunch and 500 mg during dinner ( Because Mum’s Diabetic) Calcium Tablets, Vitamin C and other Multi-vitamins : Anytime during the week Cremaffin/Looze syrup : 3 tablespoons before sleeping (To combat constipation) Emeset : 1 tablet of 4mg to be given right before taking Temozolomide (To avoid vomiting) NATUROPATHY/Special Diet (Till Date) : Ayurvedic Medicine by “Dr. Yeshi Dhonden” : He is based out in the foothills of Himachal Pradesh in a small town MCLEODGANJ. Given 4 different chewable tablets to be consumed everyday in a prescribed manner. We are following his protocol since the very first week of my Mum’s Dx. Gotu Kola (Asiatic Acid) by “Narayani Naturals” : 1 big tablespoon twice daily consumed via juice or tea or mixed with water. Cold Pressed extra virgin organic coconut oil : All food cooked in this oil. Flax seed oil : All salad dressed with this oil. Stir fry cottage cheese with flax seed oil and eat twice/thrice every day (Budwig Diet) Maximum intake of raw veggies/fruits especially veggies with high alkaline levels like kale, spinach, broccoli, bell peppers etc. Alkaline Water by “Alkalen” : 2-3 litres every day. We Keep a count of it as there a lot of medicines she consumed in a day. Essential Oils Therapy : Every night before sleeping Mix 6-7 drops of “Frankincense oil”, 6-7 drops of “Mellisa Oil” and 10-12 drops of “Coconut carrier oil” in a container and apply on * The tumor location on the head * Neck * Inside the nose * Hand Palms * Feet Palms Mix frankincense and Mellisa oil (6 drops each) in a diffuser every night before sleep. Drink 1 tablespoon on Raw Bitter Apricot oil by “Purearth” every morning empty stomach. Stay positive

RE: chloroquine, cimetidine, verapamil, and metformin in GBM

by Kvuk17 on Mon Jan 29, 2018 10:17 PM

Quote | Reply
We haven’t noticed any side effects at all and he happily takes them. The only thing that has produced side effects is the chemo and Radiotherapy. He has a tincture THC and CBD of a ratio of 1:1. I think it’s really helped his appetite and he’s never had to go back onto steroids etc which is great. He also goes to school most days and is generally a normal kid! You have to observe a 2 hour rule between taking any meds and the cannabis though as apparently, they compete for the same enzymes in the liver or something! We decided to go with a multi pronged approach to beating this tumour (with Gods guidance) and also give him a range of supplements which are: Selenium Omega 3 Probiotics Milk thistle B17 B12 Biotin Quercertin Tumeric Melatonin (15mg before bed) We researched each one before introducing them. Kirsty xxx

RE: chloroquine, cimetidine, verapamil, and metformin in GBM

by apenrod on Tue Jan 30, 2018 08:18 PM

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That is great that he hasn't had any side effects. Everything i'm reading in clinical studies are showing taking chloroquine only during radiation/chemo, i'm trying to figure out if its best to take daily or just in that period of time.  Was it mainly the cocktail thread you found this out at?  Those are all very similar supplements that we are using also. Have you looked into PSK (a mushroom extract used in Japan for cancer patients) also another one I found extremely promising was a boswellia extract.  I hope that this approach and divine interevention helps us continue to discuss our family members treatments and successes years from now :)

RE: chloroquine, cimetidine, verapamil, and metformin in GBM

by apenrod on Tue Jan 30, 2018 08:23 PM

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On Jan 29, 2018 5:39 PM mohit1291 wrote:

Hi, I’m extremely sorry to hear about this. As a matter of fact, my mother (54 yrs old) also got diagnosed with GBM grade 4 in August 2017 which turned out to be inoperable. I have detailed out the entire list of treatments and protocol we have given and are giving her till date. I strongly believe that natural supplements really help in boosting one’s immunity and helping the body to fight off tumor cells on its own. Hope the below list will help. All the best xx Conventional Treatment (Till Date) : Radiation : 30 days - Check Chemotherapy TMZ : 42 days (120 mg/day) - Check Adjuvant Chemo Cycle 1 : 5 days (240 mg/day) - Check Adjuvant Chemo Cycle 2 : 5 days (240 mg/day) - Check Adjuvant Chemo Cycle 3 : 5 days (240 mg/day) - Due next month Alternative Treatment (Till Date) : Dendritic Immunotherapy : 1st Infusion - Check Dendritic Immunotherapy : 2nd Infusion - Check Note : Tetanus Injection was given prior to every Infusion to boost immunity and activate immune cells in body. Valganciclovir dosage : 450mg x 4 / day (to fight off the CMV virus) - Ongoing Homeopathy protocol by Dr Prasanta Banerjee : Ruta 6, Calcerea Phos 3x/day - Ongoing Natural Supplements (Till Date) : IP6 & Inositol by “Cell Forte” : 2 capsules early Morning & 2 capsules Evening (Empty Stomach) - Total intake 3200 mg Curcubrain by “Now Foods” : 1 capsule early Morning, 1 capsule before lunch, 1 capsule before Dinner - Total intake 5000 mg (including organic turmeric in diet) AHCC by “Kinoko Gold” : 2 capsules before Lunch and 2 capsules before Dinner - Total intake 2000 mg Coriolus Versicolor by “Mushroom Science” : 2 capsules early morning and 2 capsules before Dinner - Total intake 2000 mg Boswellia Extract by “Now Foods” : 1 capsule after lunch and 1 capsule after dinner - Total intake 1000 mg Berberine by “We Like Vitamins” : 1 capsule after lunch and 1 capsules after dinner - Total intake 1800 mg Quercetin and Bromelain by “Now Foods” : 2 capsules before lunch and 1 capsule before Dinner - Total intake 3000 mg Goldenseal Root by “Nature’s Way” : 1 capsule after lunch and 1 capsule after dinner - Total intake 1200 mg Reishi Mushroom Extract by “Boostceuticals” : 2 capsules before breakfast and 2 capsules before Dinner - Total intake 1800 mg Maitake D Fraction pro by “Mushroom Wisdom” : 2 ml everyday Omega 3 fatty acids by “Nutrilite” - 2 capsules anytime during the day Grape Seed Extract by “GNC herbal plus” - 1 capsule anytime during the day Green tea Extract by “Life Extension” : 1 capsule anytime during the day Vitamin D3 by “Solgar” : 1 capsule anytime during the day Selenium by “Nature’s Way” : 1 capsule anytime during the day L-optizinc by “Now Foods” : 1 capsule anytime during the day Resveratrol by “Relentless Improvement” : 1 capsule anytime during the day CoQ10 by “aSquared Nutrition” : 2 capsules anytime during the day - Total intake 800 mg Milk Thistle by “Puritans Pride” : 2 capsules anytime during the day - Total intake 2000 mg Allopathy (Till Date) : Dexamethasone : 2 mg morning and 2 mg night (Maintenance Doze) Valproic Acid : 500 mg morning and 500 mg night (To avoid Seizures) Citadep : 1 tablet before sleeping (Anti-Depressant recommended) Chloroquin : 1 tablet of 250 mg after any meal (reduce side effects of chemo) Metformin : 500 mg during lunch and 500 mg during dinner ( Because Mum’s Diabetic) Calcium Tablets, Vitamin C and other Multi-vitamins : Anytime during the week Cremaffin/Looze syrup : 3 tablespoons before sleeping (To combat constipation) Emeset : 1 tablet of 4mg to be given right before taking Temozolomide (To avoid vomiting) NATUROPATHY/Special Diet (Till Date) : Ayurvedic Medicine by “Dr. Yeshi Dhonden” : He is based out in the foothills of Himachal Pradesh in a small town MCLEODGANJ. Given 4 different chewable tablets to be consumed everyday in a prescribed manner. We are following his protocol since the very first week of my Mum’s Dx. Gotu Kola (Asiatic Acid) by “Narayani Naturals” : 1 big tablespoon twice daily consumed via juice or tea or mixed with water. Cold Pressed extra virgin organic coconut oil : All food cooked in this oil. Flax seed oil : All salad dressed with this oil. Stir fry cottage cheese with flax seed oil and eat twice/thrice every day (Budwig Diet) Maximum intake of raw veggies/fruits especially veggies with high alkaline levels like kale, spinach, broccoli, bell peppers etc. Alkaline Water by “Alkalen” : 2-3 litres every day. We Keep a count of it as there a lot of medicines she consumed in a day. Essential Oils Therapy : Every night before sleeping Mix 6-7 drops of “Frankincense oil”, 6-7 drops of “Mellisa Oil” and 10-12 drops of “Coconut carrier oil” in a container and apply on * The tumor location on the head * Neck * Inside the nose * Hand Palms * Feet Palms Mix frankincense and Mellisa oil (6 drops each) in a diffuser every night before sleep. Drink 1 tablespoon on Raw Bitter Apricot oil by “Purearth” every morning empty stomach. Stay positive

Thanks so much and I'm sorry to hear about your mom also. That list is great. We are using many of the same supplements in our cocktail approach. Its great to see what others are doing to see if we can get closer to beating this crappy cancer.  :)

RE: chloroquine, cimetidine, verapamil, and metformin in GBM

by Kvuk17 on Tue Jan 30, 2018 08:54 PM

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My son takes it every day, regardless, as that what we researched and heard to be the most effective as some of these repurposed drugs are disrupting the tumours growth etc, so we can’t afford to give the tumour a break, ever! Hope you find a balance that works for you. Xx

RE: chloroquine, cimetidine, verapamil, and metformin in GBM

by Kvuk17 on Tue Jan 30, 2018 08:58 PM

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Sorry, yes it was partly on this thread and other sources that I read about taking it daily. Have you searched on this forum for “cocktail approach”? It was a guy called Rich that was advising everyone. It’s probably quite an old thread now. I’m going to look into that mushroom thing, sounds interesting!

RE: chloroquine, cimetidine, verapamil, and metformin in GBM

by apenrod on Tue Jan 30, 2018 09:03 PM

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On Jan 30, 2018 8:58 PM Kvuk17 wrote:

Sorry, yes it was partly on this thread and other sources that I read about taking it daily. Have you searched on this forum for “cocktail approach”? It was a guy called Rich that was advising everyone. It’s probably quite an old thread now. I’m going to look into that mushroom thing, sounds interesting!

Yes he was a great starting point for me to research from. I was really glad he took the time to do that. I have seen across the board people using the mushroom extract so I hope it helps you guys also.

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