New diagnosis

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New diagnosis

by JackieNP on Sun Feb 18, 2018 11:22 PM

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Diagnosed in July 2017 with G3 anaplastic oligodendroglioma. Craniotomy to remove right frontal lobe tumor in august. Started radiation on my birthday for 30 treatments. Now on cycle 3/6 of PCV chemo. I'm 48 years old and I'm afraid after reading all this I'm gonna die anyway in 2-3 years. I'm also a nurse practitioner and was told I may never go back to work. So again I wonder why am I doing this. From the beginning of all this ive been saying I need to get better so I can return to my patients. I see my Onc tomorrow and have a lot of thinking to do

RE: New diagnosis

by Sleepykit on Mon Feb 19, 2018 07:38 AM

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You are going through the treatment for a very good reason, it has very high success rates!

According to the Buckner study, patients as of 2016 survived on average 14 years and ongoing in follow up on receiving the protocol you are on. 

I was Dx over 9 years ago but with G2 oligodendroglioma, only partial resection followed by 12 rounds of temodar. Over the years, the rest showed slow growth several times, but refrained from therapy cos i wanted to get along with my life and had few restrictions. In 2017 due to regrowth and said study, i decided to go for radiation and PC, now in cycle 2/6. They have been 9 good years and I am looking forward to the next 10 to start with!

If you are tolerating the PCV well, then have faith. Oligos are slow growing and extremely radio- chemo sensitive especially if you have the mutations and deletions. 

kit

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