Temodar

7 Posts | Page(s): 1 

Temodar

by jeanssister on Mon Feb 19, 2018 09:08 PM

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My sister starts Temodar today. Through multiple screw ups in the medical system, she has gone 3 months since discovery of the tumor (2 months since final diagnosis). This is day 1 of treatment: radiation and TMZ. No surgery was performed beyond the biopsy.  What side effects are typical? How soon do they begin? I am visiting from out of state, and want to figure out when to be here, and when she'll be fine with only her husband's care, who will be at work during the day.

Other factors:

13 years ago, she had a grade II astrocytoma which was treated with radiation. She will only receive 18 treatments this time, instead of the usual 30.

She is not particularly healthy to begin with. Poor eating habits (lots of sweets, few veggies), sedentary, etc etc.

She seems cognitively compromised, despite her very high IQ. 

This is *somewhat* of a personality change: Won't accept recommendations from friends and family members. ie Duke's Brain Cancer center is located 4 hours away and she wouldn't consult with them. She won't take any supplements, including Omega 3, etc. She does take a multivitamin.

I respect these things about my sister, but I'm concerned she will limit her survival.

So my 2 questions: When will she see the highest level of side effects from TMZ? immediately? In a week or two? How much should I push her to take greater care of herself?

Thank you!

RE: Temodar

by StenE on Tue Feb 20, 2018 05:12 AM

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Hi jeanssister,

I got 250 mg Temodar a day 4 days a month for 2 years as "after treatment" to prevent a relapse. My experience is that those days I was tired and lacked concentration, and I avoided driving a car.

Concerning pushing your sister, this is hard to tell for me since I do not know her nor you. If you show her in your own way that you love her, then it may become easier to make her follow your advice.

Good luck!

Sten

RE: Temodar

by jeanssister on Tue Feb 20, 2018 02:04 PM

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Thank you, Sten! Your message gives me hope (the phrase "for 2 years"). Was it a glioblastoma? Her doc isn't very optimistic, but all they really go from is statistics.

Thanks, Beth (aka jeanssister)

RE: Temodar

by modesta on Tue Feb 20, 2018 09:07 PM

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tell her to stop the sugar - if nothing else

RE: Temodar

by StenE on Wed Feb 21, 2018 05:07 AM

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Hi again Beth,

I had PCNSL, primary central nervous system lymphoma, a brain tumour in my cerebellum in 2012 at the age of 68. I got tough treatment including autologous stem cell transplant. I am now cancer free since 5 1/2 years and the only remaining problem is a slight neuropathy, a little numbness of my feet, which does not bother me at all. I am in good shape, quite fit actually.

Good luck to you and to your sister!

Sten

RE: Temodar

by jeanssister on Wed Feb 21, 2018 02:01 PM

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Hi Sten,

Thank you, and I'm so very happy for you! My sister's daughter had an autologous bone marrow transplant in 1986 for leukemia. Medicine has moved forward. I hope my sister survives until her cure can be found.

Beth

RE: Temodar

by jackthedog on Fri Feb 23, 2018 12:23 AM

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hello, I have oligodendroglioma, biopsy in 2012, 15cm in size, was told nothing else could be done do biopsy to relieve pressure or wait to stroke out, august to sept 27 of 2012 had proton therapy and had temodar at same time. i was in sad shape before proton therapy , sliding out of chairs, falling in shower. neuro oncologist said nothing to be done.was told 4yrs

for your question, food , drink had no taste unless bad, all i wanted to do was sleep, had considerable weight loss and lost my hair. try this

change your diet, go to ketogenick, low-carb, several studies canada, phoenix that by using the diet change it removes the glucose and starves the cancer cells,going to paste some info, do not lose hope, and pray it helped me, be pro active in your disease research, will answer what i can. jon beavers  Scientists studying effect of ketogenic diet on brain cancer

CTV National News: Fighting cancer with food

Scientists are studying whether a high-fat, low-sugar and carb diet
can help brain cancer patients. Avis Favaro reports.
EXTENDED: Dr. Jong Rho interview, part 1

The Alberta Children's Hospital's Dr. Jong Rho discusses what's known
about diet's effects on cancer, and what study remains to be done.
EXTENDED: Dr. Jong Rho interview, part 2

The Alberta Children's Hospital's Dr. Jong Rho discusses what's known
about diet's effects on cancer, and what study remains to be done.

What i have learned.
cancer loves glucose, how to reduce remove.
several studies going on,  Canada is leading in this area not the huge
profit centers north of border, Dr.s complain about funding , no
profit to the pharm. co.s
 fat people more prone to cancer,
  switching on cellular level fuel from glucose to Ketones. using a
kentogenic diet.
low carb. diets in past bad mouthed , changing.
       look up following dr.s, and review.
Can a ketogenic diet be helpful in cancer treatment? There are many
reasons to believe this, e.g. that nearly all cancer cells burn lots
of sugar, and grow more under the influence of high insulin levels.
You could say that most cancer cells are addicted to carbs, for
optimal growth.

I sat down with Dr. Angela Poff, one of the top experts in the field,
and it turned into a very enlightening interview.

Scientists studying effect of ketogenic diet on brain cancer



March 26 2017 by Dr. Andreas Eenfeldt, MD in About membership, Cancer,
Ketosis, Low Carb High Fat
2,226 views
Can a ketogenic diet be helpful in cancer treatment? There are many
reasons to believe this, e.g. that nearly all cancer cells burn lots
of sugar, and grow more under the influence of high insulin levels.
You could say that most cancer cells are addicted to carbs, for
optimal growth.

I sat down with Dr. Angela Poff, one of the top experts in the field,
and it turned into a very enlightening interview.

Scientists studying effect of ketogenic diet on brain cancer

CTV National News: Fighting cancer with food

Scientists are studying whether a high-fat, low-sugar and carb diet
can help brain cancer patients. Avis Favaro reports.
EXTENDED: Dr. Jong Rho interview, part 1

The Alberta Children's Hospital's Dr. Jong Rho discusses what's known
about diet's effects on cancer, and what study remains to be done.
EXTENDED: Dr. Jong Rho interview, part 2

The Alberta Children's Hospital's Dr. Jong Rho discusses what's known
about diet's effects on cancer, and what study remains to be done.

Scientists studying effect of ketogenic diet on brain cancer

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