GBM & dementia-like symptoms????

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GBM & dementia-like symptoms????

by jeanssister on Wed Feb 28, 2018 04:52 AM

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My sister has undergone 1 week of radiation & 1 week of Temodar. About day 3 of radiation, she had a few symptoms that reminded me of my dad's Alzheimers in early stages. Today was day 9 since the start of treatment, and she displays what I would call full-blown mid-stage dementia most of the time, with some moments of clarity. The doc started her on dexamethsone today in case it is due to swelling. If not better by Thursday night, they'll do another MRI, the first in 3 months since it was first discovered. 

Has anyone experienced this yet? What was it? What helped it?  Thank you.

RE: GBM & dementia-like symptoms????

by wmattingly1974 on Thu Mar 01, 2018 03:54 PM

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On Feb 28, 2018 4:52 AM jeanssister wrote:

My sister has undergone 1 week of radiation & 1 week of Temodar. About day 3 of radiation, she had a few symptoms that reminded me of my dad's Alzheimers in early stages. Today was day 9 since the start of treatment, and she displays what I would call full-blown mid-stage dementia most of the time, with some moments of clarity. The doc started her on dexamethsone today in case it is due to swelling. If not better by Thursday night, they'll do another MRI, the first in 3 months since it was first discovered. 

Has anyone experienced this yet? What was it? What helped it?  Thank you.

I don’t know exactly what chemicals my doc dripped into my body recently when I went thru several rounds of chemotherapy but I know my memory is failing somewhat, so much so that the CA DMV has cancelled my drivers license. I plan to sue them for its return.

RE: GBM & dementia-like symptoms????

by butler on Thu Mar 01, 2018 05:52 PM

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Have them check her ammonia levels...HE could be the culprit

RE: GBM & dementia-like symptoms????

by Hicko on Thu Mar 01, 2018 08:50 PM

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Hi Jeanssister,

I have just completed 6 weeks of radio/temodar for GBM.

The radio knocked me around, I am a 46 yr male and relatively fit. Two things that helped me were plenty of rest (I typically have a 45 min power nap at 3pm each day) and introducing some more energy into my body. The energy is a drink called Powerade which includes sodium, potassium, calcium and magnesium. Now I was told not to take multivitamins during chemo as they may effect the drugs, so I didn't, but I needed something to increase my energy levels. The Powerade had given me more energy and made my thinking clearer which in turn has increased my confidence. Small steps in the right direction.

Hope this helps.

Dave

 

RE: GBM & dementia-like symptoms????

by jeanssister on Thu Mar 01, 2018 08:58 PM

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Thanks, Dave! My sister's sodium has been low, a suspect in the dementia, so Powerade might help a lot! I can find it at the grocery, right?  Beth

RE: GBM & dementia-like symptoms????

by weAre1 on Fri Mar 02, 2018 04:03 AM

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My husband 55 was diagnosed with gbm July 2017, has had surgery, radiation and chemo. Since he had surgery yes he Indeed acts like he has dementia. He is unable to work and needs help with medication, food prep and daily living cares.

RE: GBM & dementia-like symptoms????

by jeanssister on Fri Mar 02, 2018 02:14 PM

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I'm so sorry about that, and he's very lucky to have you. The confusion is difficult for Jean's husband. Personality change, too, but that seems to be improving with dexamethesone. She talks about people and pets long gone. But sometimes she is clear as day.

RE: GBM & dementia-like symptoms????

by kodykode on Mon Mar 05, 2018 10:15 PM

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I have had some severe memory lapses..They actually call it chemo brain. It is one of the side effects and VWRY frustrating. SUPPORT FOR HER IS VITAL..

God bless, I hope this is what it is and,nothing more serious.

Cyn

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