Losing control

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Losing control

by Joanypone on Fri Mar 02, 2018 04:26 AM

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My husband was diagnosed with multiple myeloma in Dec/17 and although the chemo treatments are showing very good results, he has lost 40 pounds, shuffles while he walks and is starting to shake to the point where I have to write for him.  He is angry or impatient most of the time and I'm sure that he is hating the fact that he's losing control over his life.  He is dizzy all of the time so I am now the primary driver of his car. What can I do or say to help him through this transition.  He's not a candidate for stem cell given his age (73) so his prognosis is only about 2/3 years given the severity of the cancer.  

RE: Losing control

by imyaya on Sun Mar 04, 2018 02:05 PM

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Hi- My husband was diagnosed with MM afetr his hip and pelvis colapsed due to a tumor in Jan. 2015. He had been misdiagnosed with another bone problem a few months before that. There is no way of knowing how long he or your husband has had this disease before the diagnosis. Most of my husbands shaking, dizzy, and mood swings are from the meds he takes,not the MM. Those meds keep the cancer from spreading,making the life expectancy longer. My husband has not had a transplant either. A friend of ours had three, each lasting only months so I don't see a transplant as a big deal. Also the process is very hard on the patient. My husband was stage three at diagnosis. He can now walk with a cane after the radiation for the tumor. I know too what the average life expectancy is, but please do not just go by that. As my husband has lived past the average as many have please don't dwell on that. My husband was 62 when diagnosed. He will be 66 in June of this year. He takes Revlimid and dexamethasone along with all kinds of anti virals anti biotics etc. I've been told that pnuemonia, or kidney failure is what killd MM patients, not the cancer itself. Blessings to you and your husband. Gigi

RE: Losing control

by Joanypone on Fri Mar 30, 2018 02:39 AM

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Thank you for your reply, Gigi...I only saw it now!  Your response was very positive and I thank you for that. Lew is 73 and was stage 4 when diagnosed in Dec/17.  He is doing much better with the pain managed well with the long-lasting morphine but still struggles with dizziness and tiredness.  So good to hear from someone 'going down the same road as us'!

Blessings to you both

as well and have a happy Easter!  Joan

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