GBM

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GBM

by Eldridge on Thu Mar 08, 2018 09:52 PM

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After surgery in December 2016 to remove a tumour on my right occipital lobe, it was found to be benign, though i knew a very small piece wasnt removed because of the sensitive area where it sat,3 months after surgery i was scanned & i got the all clear, but between March & the second scan, it had metastisized & become a grade 4 gbm, i had 30 doses of radiotherapy alongside 42 doses of chemotherapy in tablet form taken at home, im now almost halfway through the second stage of chemo, what the future holds, i have no idea, but i remain positive & upbeat, i do as much as possible, cycled over 1600 miles last year, i do miss not being able to drive, but i am very fortuneate there are 2 railway stations near home, buses outside the door & lots of good friends.

Eldridge

RE: GBM

by Macpudd on Wed Mar 14, 2018 11:25 PM

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Hi Eldridge,

This is my first post in this forum. I had a Tonic Clonic seizure in January and after CT and MRI had a craniotomy to remove tumour from left temporal lobe, pathology said it was a GBM grade 4, and I was told I would most likely live for 14 to 16 months if I had treatment. I am 52 and male. I am midway through 30 sessions of radiation and 42 days of TMZ chemo. In October 14 I was diagnosed with stage 3 colon cancer and had RT hemicolectomy and 12 cycles of Folfox. I live in Ireland and have been told that when diagnosed with GBM4 I cannot drive for at least 2 years, so much for lasting that long. I am still reasonably fit but have started having blurred vision in the last few weeks. Great to hear you are positive and upbeat, which I also try to be. Hope things continue to be positive for you.

Regards

Macpudd

RE: GBM

by Normasdaughter on Sun Mar 18, 2018 03:36 PM

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Hi there I have just joined this discussion group. My mom who is 74 was diagnosed 8 years ago withGBM and given the usual 3-14 month survival - well she's blown that away. She had surgery a day after seizure had aggressive chemo and radiation then signed up for Avastin treatment which we were told had no evidence of increase in survival. She is now having mobility issues, loss of bladder control and pitted, weeping edema in both legs. Her last MRI one week ago showed no new growth in tumour but there is other white matter changes possibly related to radiation necrosis. She now takes Cannabis oil daily since progression of tumour and it has not grown since she started taking it. Blurred vision could just be age related but definitely mention to your doctors. Although I'm the caregiver not the patient I see first hand the struggles you all go through. There will be bad days and I hope you all have people to help you get through them good luck to all of you.
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