leukocytosis

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leukocytosis

by Bandymom on Tue Apr 17, 2018 07:01 PM

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I have been diagnosed with leukocytosis (extremely high white cell count).  My mom's sister died of myelofibrosis, which she developed in her late 50's.  My question is: Is leukocytosis a marker for myelofibrosis?  Since my aunt had myelofibrosis, could I also get it?  I want to get the JAK gene test to see if I am a carrier.  I was diagnoses with sickle cell trait as a child.  Not sure if this would apply to this.

RE: leukocytosis

by MixDiagnosis on Sun Dec 15, 2019 02:48 AM

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HI! I was dismissed with leukocytosis so many times it makes me cringe!!! I have been seeking a diagnosis because I would go through periods of energy, then extreme periods of fatigue. I was dealing with MAJOR emotional distress and during an ambulance trip in 2015 was diagnosed with Polycythemia. My mother had just had survived a mastectomy & breast cancer. Then my 82 year old grandmother was diagnosed with breast cancer and very quickly had it removed and she became a survivor. I have a long family history of cancers. All kinds, breast being most predominant. After 12 years of effortlessly seeking a more logical answer than just leukocytosis with elevated numbers due to my smoking, I have always had this weird throat spasm episode that would come and go. Sometimes happening several times in a year, then not again for 3 years, sometimes presenting itself but once every year or two...or three. Well, this November (my 40th birthday was days away) I had a severe "episode" with my throat and couldn't swallow and something clearly moved in my trachea (as usual) only this time it lasted for a little while longer than in the past and the impending doom was felt for almost 2 hours. Once the blocked airway was opened, it completely moved. It felt like a sliding blister inside of my throat that slid over more to the right from the middle. Sorry to be so detailed, I just prefer to explain the severity of the situation. Long story short, I was THERE a year ago. I have an appointment this Monday to go over my enlarged lymph nodes from my thyroid ultrasound. I told so many people for so long that something wasn't right, only now I'm exhausted. Now my lymph nodes are painful and all kinds of things are seeming to shut down in my body. I said to myself right after my incident "This would be poetic. Go out with a bang. Here at my 40th year of life, I finally will get the answers I need for my offspring to remain informed & preventative, but not nearly enough time to spend with them yet!'' I really hope you stay informed and concerned, I was tested for the JAK2 gene and did not have it. Being referred to a hematologist only showed me how dismissive people can be involving cancer (((In any situation))) If you aren't satisfied with the results and something isn't sitting well with you, It's almost always on point!!! Never settle!!! Best of Luck!!

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