My husband got results of his cat scan

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clarebear33 clarebear33
(Inactive)

My husband got results of his cat scan

by clarebear33 on Fri May 04, 2018 08:16 PM

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My husband just got his CT scan. It says. Right kidney: There is a solid mass measuring 2.5cm Left Kidney: There is a 5.2 x 4.2 mass involving the left kidney which was not in field of view. The impression said: Bilaterial heterogeneous enhancing solid masses measuring 5.2 cm on the left 2.5 ont he right. Renal Cell Carcinoma in the differential diagnosis correlate clinically. Large gallstone. He has an appointment next week with a urologist. I know that carcinoma is cancer. I looked up everything online. Some of the posts here say with the 5cm the kidney was removed. He has issues with both kidneys. While I'm not looking for medical advice I could sure use some opinions if this was similar to your diagnosis or what all the medical jargon means. He went in to get himself checked since his father just had his kidney removed from cancer. he has no symptoms, lympho nodes checked out ok. no renal vein ablation. Please help me be a little bit more informed when he goes to his appointment next week. Any thoughts would be appreciated. Thank you!

RE: My husband got results of his cat scan

by ToddlerFather on Fri May 04, 2018 11:00 PM

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Some questions to consider asking the MD:

- With which scenarios are the findings compatible ? ( ) RCC ( ) Metastatic cancer from a different organ ( ) Adenoma or other benign lesion ( ) Kidney stones
- Is doing a biopsy of the mass carries more benefit than risks ? 
- Is removing the kidney an option for the possible scenarios ? Is it a better option, a safer option, a risky option ? 

Some questions for your husband and his family:
- What are the other known cancer cases in the family ? 
- What are the other bening tumor cancer cases in the family ?

- What are the other known kidney issues in the family ? 

clarebear33 clarebear33
(Inactive)

RE: My husband got results of his cat scan

by clarebear33 on Fri May 04, 2018 11:10 PM

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Thank you! I'll write those down.

RE: My husband got results of his cat scan

by jboth007 on Mon May 07, 2018 03:59 AM

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Bilateral is unfortunate but manageable. Clearly, surgeons want to preserve viable tissue. The smaller lesion in the R will be partial. Hard to say with the left. Where it is in the kidney might play a role. The good news (lets focus on that) both are relatively small and as long as they are contained, as it appears they are, you will have a happy outcome. 

RE: My husband got results of his cat scan

by ElaineHillHeart on Mon Oct 28, 2019 03:14 AM

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On May 07, 2018 3:59 AM jboth007 wrote:

Bilateral is unfortunate but manageable. Clearly, surgeons want to preserve viable tissue. The smaller lesion in the R will be partial. Hard to say with the left. Where it is in the kidney might play a role. The good news (lets focus on that) both are relatively small and as long as they are contained, as it appears they are, you will have a happy outcome. 

I had same result on CT scan . Good news is tumor is smaller than higher stage cancer of the kidney . Mine was Stage one and not in Lymph nodes . Just know kidney surgery will probably be partial nephrectony removal of tumor . My stage one cancer was not in Lymph nodes and was contained only in tumor itself . Be prepared to feel exhaustion and weird for a long time to come . It has been 6 weeks and I am still very weak . Kidney surgery is one of the most invasive surgeries because of all the veins and arteries that have to be reattached. Good news is They caught it early you most people don’t know until stage 4 or 5 . I found out accidently myself when I had a CT scan for hysterectomy surgery .

RE: My husband got results of his cat scan

by sidjones1 on Thu Dec 19, 2019 06:51 PM

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I lost half of a kidney due to a clear cell kidney cancer tumor in 2014. They can take portions of the kidney out and reconstruct to have a functioning partial kidney. Hopefully this is in your husband's options. Secondly..... my cancer came back with a vengiance last year after 4 years. Check to see if he is a canadate for immunotherapy based on something called a PDL1. This may be helpful in the cancer progressing and spreading. Best of luck, my prayers are with you. Kevin :-)

Here is my story:

Hi, I am just seeing your message today and feel compelled to respond. I sure hope and pray things have gotten better at this point for your sister. I too have stage 4 renal cancer that has spread to my bones. It is widespread at this point and involves my hip, pelvis, spine, ribs and shoulders. I was diagnosed on 8-31-2018.

The first month was a testing to see where it was and what type of cancer it was. I was lucky because mine fell within the PDL1 marker, which meant I could have imunotherapy. I started on Opdivo & Yervoy treatment, as well as a bone hardening acid called Zometa. The Opdivo & Yervoy treatments were once a month x 4 months and the Zometa was once every 3-4 months. For pain I used Cellebrex and Narco.

My first 2 months were HORRIBLE. The combination of Opdivo & Yervoy caused me to have afib and hospitalized me twice. I was pretty much bed bound and weak and miserable. After 2 treatments, the doctor dropped the Yervoy and I had only the Opdivo every month via IV and the Zometa via IV every 3-4 months.This was so much better and I started getting my strength back. Within, a month or so I was walking again and able to function and leave the house again.

It has been a year and several months now. The Opdivo has kept me in check and they are even seeing new bone growth in my CT scans (which are done every 3 months). I am able to enjoy life again and do things with my friends and family.

Wishing you only the best. Kevin :-)

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