polycythemia Vera

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polycythemia Vera

by susan01 on Thu Jun 14, 2018 02:52 PM

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I was told at first  that I had ET   I have a jak 2  Gene I have been on hydrea  for almost 10 years now   1 a day  my platelets  go up and then  go down   I was taking them mon to fri   now  i take them mon  to sat   Last time I went they were normal   then  saw the doctor last week and they were 699 so  he didnt seem too be too concerned as my pattern is up then down then up  then down     Does anyone else have the same problem  

RE: polycythemia Vera

by susan01 on Thu Jun 14, 2018 02:53 PM

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Also  they  now said I have PV  not ET

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