mesonephric adenocarcenoma

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mesonephric adenocarcenoma

by skg0428 on Wed Jun 20, 2018 11:24 PM

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Hoping to find someone with a similar diagnosis. My daughter is 21, diagnosed with mesonephric adenocarcenoma. The mass was attached to her pelvic floor muscle, not attached at all to any reproductive organs a, attached itself to nothing, grew to the size of a grapefruit and pretty much stayed away from attaching to anything. Her particular case is about 1 of 5 ever reported, most having a cervical, ovarian or uterine involvement (of which there are only about 50!). Looking to find others who have been diagnosed with this very rare cancer, what thier thoughts are, thier stories. After many consults and tumor boards, it was decided to do radiation to make certain that this is gone. She underwent 6 weeks of radiation. Repeat PET scans showed only one concern of a tiny module on her lung, so tiny, but they want to biopsy it now to leave no stone unturned. Hoping to find someone to voice off of ;) thank you for any and all support!!
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