Anaplatic astrocytoma wild type IDH1 back after 12 months

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Anaplatic astrocytoma wild type IDH1 back after 12 months

by Lilly1017 on Thu Jun 21, 2018 03:57 AM

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Hello everyone, Had surgery, 6 weeks of radiation, 14 months of Chemo. My last MRI before my last round of chemo showed a change in cancer cells after one month. Has anyone been through this? I’m very scared it’s back and don’t want more treatment! Thanks for all your input. ?? Never ever give up! Lisa

RE: Anaplatic astrocytoma wild type IDH1 back after 12 months

by bizzerbee on Mon Jun 25, 2018 03:19 PM

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Hello Lisa, While I do not have experience with this I just wanted to reach out since you haven’t received a reply yet. I am sorry to hear about your possible reoccurrence. I can imagine that it disheartening and scary. I do know from looking back at old post that many people have regrowth and are able to change course with treatment and get back on track. I also know that there are more trails available fora AA3s once you have had standard treatment and a regrowth. I would ask your NO what might be available to you now! Good luck and many virtual hugs to you, Bryce

RE: Anaplatic astrocytoma wild type IDH1 back after 12 months

by Borov84 on Mon Jun 25, 2018 05:09 PM

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You should definitely ask your oncologist if the Tocagen trials are available in your area. I know it’s available in many places throughout the US for recurrent GBM and AA.
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