Leiomyosarcoma

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Leiomyosarcoma

by KathrynNevada on Tue Jul 03, 2018 09:20 PM

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My husband was recently diagnosed with Leiomyosarcoma on his right upper thigh. He just had the CAT scans to see if there are any mets. 

Anyone else out there going through similar? We don't know anything about which stage or if our doc is competent  

RE: Leiomyosarcoma

by howell58 on Mon Jul 23, 2018 12:32 AM

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Hello-For any type of sarcoma you need to get to a team of sarcoma specialists.  My husband has a lipsarcoma of the retropertoneal.  He has been with Sloan Kettering in NY going on 11 years now. It is a rare cancer, and the oncologist here in NJ where we live didn't give us a choice of where we needed to get treated because most doctors will never see a sarcoma in their lifetime of practice.

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