Has anyone quit Ibrutibib Successfully?

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Has anyone quit Ibrutibib Successfully?

by irishgreekmike on Thu Jul 12, 2018 06:18 PM

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I was diagnosed with CLL last December, 2017; I had it since July, 2017 but the first doctor misread the blood work.   My WBC was 111,000 in December, and since then, with a daily dose of 420 MG Imbruvica (ibrutinib), as of July 10, it is at 15,000.  I was told by two oncologists that if the WBC gets normal (below 10,000) and stays there a few months, that MAYBE I can go off the Inbruvica.  Another oncologist told me that might be imprudent because if the CLL flared up again, the Imbruvica might not work a second time. I do not want to be taking such a heavy medication if I do not need it.  Does anyone have experience in this regard - getting off and staying off the drug? Thank you!!!

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