Hope

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Hope

by Savemydad on Wed Aug 22, 2018 07:09 PM

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I want to thank Todd and Cmarie (I think that is her user name) I can't find my glasses. Thank you for giving me some hope for my father. My father's brother just passed away May 18th from complications due to a tumor in the brain. He knew for 3 years but told no one (not even my cousins). It was devastating. Then my dad was diagnosed with stage iv esophageal cancer. It has metastasized to the lymph nodes and a spot on his lung. My dad is a young 73. Just turned this month...anyway I have heard basically its a death sentence. When I originally posted on here I was scared and when no one replied of course I was upset. However I didn't realize how many threads there are. A lot with amazing stories of hope. I just want my dad, my hero, the greatest man I have even known to be here for a long time. We need to make more memories. I'm so scared I'm sorry. I don't really know where to go with all of this. My dad is the one who is sick so this is about him and my sister and I are trying to do the best we can but our situation complicated by other "family" issues. I am being strong for my dad and trying to be for the rest of my family. I have some specific questions. Not necessarily private but don't want to bore everyone with my questions or impose on everyone when asking for advice. I know every situation/p person is different but I'm honestly just trying to take care of my dad and yet not step on his toes by doing things he is fine to do. (He gets very upset) I guess I would to. Anyway if anyone can help/talk to me it would be appreciated. 

I pray every night for everyone. 

Thank you

Smd

RE: Hope

by Savemydad on Wed Aug 22, 2018 07:11 PM

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I have one other question..what does the HER mean. I read in one thread someone's was negative. I have not even heard them mention that and we have an appt Friday so I want to be prepared.

Thank you

RE: Hope

by Time2live on Thu Aug 23, 2018 02:25 AM

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Sorry to hear about your dad's condition. I too have stage 4 disease. Chemo, operations and a lot of praying and support from family. Still swinging. No current detectable disease. Support your dad treat this aggressively. It might work out better than you think. If you can get doctors to cut out the tumors it will help. Available to share what I know. Best wishes for a full recovery. In our prayers.

RE: Hope

by Time2live on Thu Aug 23, 2018 02:28 AM

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HER is a marker that is useful for deciding on medicine. HER2+ Patients can get benefits from herceptin. Best wishes

RE: Hope

by jripsky on Thu Aug 23, 2018 03:03 PM

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11 years ago I started my jouney with e/c went through chemo and radiation then they operstion removed about 70% of stomact and about 75% of my esophagus. Yes  I am liveing under a new normal. I think I have some sort of a restriction in the pull up part of my stomack, hope to find it on monday. No sign of the cancer yet. What I am saying it  is not a death sentence. Keep the fath and stay close to your father.

RE: Hope

by Savemydad on Wed Sep 05, 2018 04:48 AM

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Hi. At first they said surgery, radiation and chemo. Now the only option is aggressive chemo

4 Xeloda chemo pills a day and chemo through his port every 21 days.

Just had 2nd round of chemo on the 31st. Pet scan on the 14th.

So its bad. Can someone pls help me and just give me some sort of time frame. I'm hoping for a cure but they already told us they are only able to possibly stop it from spreading.

It had metastisized to his lung, lymph nodes and today I read stomach cancer.....is that different than esophageal cancer. I know they connect.

I'm so confused. My dads been so sick but still working....I just want more time to make some more memories but he doesn't seem to want to. The situation (drama filled) doesn't make this easier on anyone I just want my dad to be happy....

Thank you

RE: Hope

by Savemydad on Wed Sep 05, 2018 04:49 AM

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Thank you both! I hope you are both doing well and will keep you in my thoughts and prayers.

Love

Christine

RE: Hope

by Savemydad on Wed Sep 05, 2018 05:00 AM

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I don't think my first message posted. My dad was told at first they would be doing surgery, chemo and radiation. Now it's 4 chemo pills a day and chemo through his port every 21 days.

I just want my dad to be happy. He's worked his butt off his entire life. 

Selfishly I want time to make more memories worth him. He how ever doesn't seem to want that. He's so sick after chemo  and then he's only just ok For about.8  days...could someone just help me and tell me if he was diagnosed at the end of July how much time he most likely has. I'm positive, I believe in miracles but I have to have some sort of idea...thank you xo

RE: Hope

by Savemydad on Wed Sep 05, 2018 05:02 AM

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I don't know if it where my other post is posting :(

RE: Hope

by Savemydad on Wed Sep 05, 2018 05:02 AM

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I don't know if it where my other post is posting :(

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