Kidney cancer moved to Lungs, taking sutent; survival rate?

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Kidney cancer moved to Lungs, taking sutent; survival rate?

by djmarcon on Thu Sep 06, 2018 04:35 AM

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Hello, my husband had kidney cancer 12 years ago. Had tumor and left kidney removed. We found out 2 weeks ago that the cancer is back in his lungs. Tons of nodules and they are large. Not opperable. He started Sutent a week ago. Side affects are difficult to deal with, nasia, memory issues, headache etc.

Not easy to find information on this and it seems like the survival rate is low. Does anyone have any information? are you having sucess with this?

thank you

RE: Kidney cancer moved to Lungs, taking sutent; survival rate?

by JennyA on Fri Oct 05, 2018 01:46 PM

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Hi I was diagnosed with kidney cancer in 2005 but given the all clear after having my kidney removed. 2 years later it then came back into my shoulder. Another op. In 2010 it then hit my thigh, anotherop. 2014 it then hit my L3 vertebrae, another operation. 2016 it then hit bmy left rib. Operating wasn’t an option. It has now travelled into the soft tissue and into my lung. I have been on sutent since 2007. I did start I think on 50mg but had many side effects and so gradually was taken down to lower doses and have been on 12.5mg for many years. When I first went on sutent my blood pressure went up as did my cholesterol and thyroid. I’m still on bp and thyroid meds. I have out lived my expiry date but I do put that down to diet, exercise and being positive. Sugar is the first bit of poison one should give up, as it does feed cancer. I went organic. I have a lemon juice with hot water and about 1/4tsp of baking soda every morning. I then have a green juice adding to the greens, garlic, ginger, turmeric, beetroot, hemp seeds or oil, banana and sometimes another piece of fruit to help with taste. I usually put a little organic honey in as well. My Oncologist suggested that asparagus is very good for cancer. From what I’ve read it is to be cooked up and put through the blender and then take 4 tablespoons per day. I also put a couple of tablespoons in my green juice. I’m now 68 and feel very lucky to be still here. I always think of the many young children suffering that really haven’t lived. I also think if I wake up tomorrow I know it’s going to be a good day whatever happens. I hope this gives you some glimmer of hope. Jenny

RE: Kidney cancer moved to Lungs, taking sutent; survival rate?

by JenKimball on Fri Nov 16, 2018 08:53 PM

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My mom has had great luck with Opdivo infusions. The nodules have shrunk.

RE: Kidney cancer moved to Lungs, taking sutent; survival rate?

by JenKimball on Fri Nov 16, 2018 08:55 PM

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On Sep 06, 2018 4:35 AM djmarcon wrote:

Hello, my husband had kidney cancer 12 years ago. Had tumor and left kidney removed. We found out 2 weeks ago that the cancer is back in his lungs. Tons of nodules and they are large. Not opperable. He started Sutent a week ago. Side affects are difficult to deal with, nasia, memory issues, headache etc.

Not easy to find information on this and it seems like the survival rate is low. Does anyone have any information? are you having sucess with this?

thank you

My mom has had great luck with the opdivo infusions and the nodules have shrunk. Good luck. 

RE: Kidney cancer moved to Lungs, taking sutent; survival rate?

by Grub52 on Sat Dec 01, 2018 06:00 PM

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My husband hsa been on sutent 50mg for a year and a half he was on 4 weeks on 2 off but that was making him sick so he went on 2  weeks on 1 week off this made it tolerable. (Coat the pills with peanut butter to avoid mouth sores and use baking soda tooth paste, CBD cream works well for sore feet) This has kept the cancer a bay but now his kidney is not working well so he has to go off the meds for a while. I don't know what comes next.

RE: Kidney cancer moved to Lungs, taking sutent; survival rate?

by inkslinger on Mon Dec 03, 2018 04:35 PM

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I was diagnosed with kidney cancer in 2011 and they removed a mass and my left kidney. i was told 90% of kidney patients having this procedure never have another issue with kidney cancer.

One year later, I was diagnosed with stage four Clear Cell Renal Cell Carcinoma - with mets in my lungs, liver. Eventually tumors were found in my bones.

I was told, the five year survival rate was only 5%. 

I have been on Sutent (after trying infusions of other meds) for over six years now. My last scans showed no edvidence of disease.

I did have radiation treament at Cancer Treatment Centers of America to address the bone tumors and I continue to be treated by them.

I'm 71 years old now and after my last radiation treatment for the bone cancer three years ago, I got on my Harley and road 7,400 miles across the country and back to Atlanta.

My advise, is to limit exposing your husband to the negative information found on the web and the two of you concentrate on living. Yes, complications adn the side effects from the meds can be tough, but you just have to embrace it as best as you can. Keep moving and never give up.

Lastly, I would advise you and your husband to try and find a Cancer Support Group nearby and get to know the other folks going through the same thing. 

When you are the patient, and you're told you have stage four cancer, for a cancer that cannot be cured, many of us immeditely feel like we are on a island by ourselves. Alone and the wind in our sails are gone. But there are others walking the same path, try to find those folks and let them lift you up with their survival stories and encouragfement. 

My heart goes out to you as I know what you are going throuhg. My prayers are with you, your husband and your family. 

God bless. 

RE: Kidney cancer moved to Lungs, taking sutent; survival rate?

by Minimartin on Fri Mar 08, 2019 04:55 PM

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After having no symptoms, I was shocked to find out I had a 6.2cm mass surrounding my right kidney and adrenal gland in 2016. It had spread to my both my lungs, the scan showing so many tiny tumors that they looked like stars in the sky. I tried votrient and couldn't handle it. Oncologist switched me to Opdivo infusions. Worked on cancer in lungs in four months. I no longer take it. I have scans every 6 months and so far I have had no reoccurences. I go for my next one in April. I have had some side effects from the Opdivo, but I am here. I would urge you not to concern yourself with five year survival rates. No one but God knows when we are leaving this earth. Best wishes and God bless and be with you on your journey.

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