Ben Williams' "drugs cocktail" approach (Glioblastoma)

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Ben Williams' "drugs cocktail" approach (Glioblastoma)

by JenJen81 on Fri Sep 14, 2018 05:34 AM

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Hi everyone,

I'm completely new here. My mum who is 68 was diagnosed with a glioblastoma just last month and has already had the debulking surgery. She is going to be half way through her radiotherapy today which is only six sessions over two weeks. She has been on dexamethasone since she was taken into hospital at the end of July and those things have had certainly had their own side effects and made things more difficult in terms of her energy levels and muscle weakness in her legs.

I found out about Ben Williams online and have his book. I've been managing to skim read bits when I manage to have the time just before bed if I'm not too tired. I'm the only one caring for my mum so it has been tough. 

I've read about his cocktail of drugs and how he has beaten cancer and also read about several people on here who have survived far longer than is usually predicted and also taken cocktails.  The thing is, I'm completely overwhelmed and don't know where to start. 

When I asked my mum's oncologist about traditional Chinese medicine to help her through radiotherapy it was a straight up, "Nothing during radiotherapy as it could affect it", yet I've seen studies online that suggest TCM helps with side effects at the very least? When I spoke to the cancer specialist nurse she reiterated what the oncologist said (of course) but added that after radiotherapy it was, "At your discretion", and this also extended to CBD oil when I asked about it. This attitude doesn't make any sense because my mum is taking a few supplements already including turmeric, omega 3 and vitamin C (slow release) but no one bats an eyelid about those so what difference does another bunch of herbs make?

Anyway, basically what I'm really wanting to ask is in this post is, does Ben Williams provide a PDF anywhere with an exact list of the drugs he took plus the dosages and the schedule for taking them? Like I said, I have his book but I get anxiety about reading it cover to cover to get that information and "wasting time" when I could just jump straight into getting my mum medication that could save her life. The thing is, I'm also anxious about giving her other things without the guidance of a medic since she has an underactive thyroid and takes 100mcg of levothyronxine daily.

I've heard about the Care Oncology Clinic in Harley St, London and from my understanding they are open to compassionate approaches. Would I be better off speaking to them and see if they repurpose drugs to get my mum going? I'm quite sure the conventional NHS oncologist will want to give my mum chemo but we're going to have a reivew a week today to see what the impact of the two weeks of radiotherapy will be.

I have a gut feeling (Lord, please) that this isn't the end for my mum, that she can outlive this thing because she has always been amazingly strong and no way in hell am I going to accept what I call the bullsh*t palliative "care" which is basically, "We're just waiting for you to die." If Ben Williams and others can do it then so can she, so can all of our loved ones.

I've already messaged Ben via the Virtual Trials site but I have no idea if he definitely receives messages or how long he might take to respond, which triggers my anxiety all over again.

I'm hopeful he'll get back to me but I'd really appreciate any assistance with getting Ben's cocktail/dosage list and open-minded oncologists ideally in London but even across England or further afield.

Many thanks and God be with us all.

Jen

RE: Ben Williams' "drugs cocktail" approach (Glioblastoma)

by apenrod on Mon Sep 17, 2018 05:08 PM

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http://btcocktails.blogspot.com/

and

https://virtualtrials.com/pdf2017/treatment_options_gbm_2017

I found these to be the most helpful in looking at what to put my mom on and helped to figure out the dosages. Hope this is helpful to you.

RE: Ben Williams' "drugs cocktail" approach (Glioblastoma)

by JenJen81 on Tue Sep 25, 2018 09:00 AM

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On Sep 17, 2018 5:08 PM apenrod wrote:

http://btcocktails.blogspot.com/ "" target="_blank" rel="nofollow">http://btcocktails.blogspot.com/ " target="_blank" rel="nofollow">http://btcocktails.blogspot.com/

and

https://virtualtrials.com/pdf2017/treatment_options_gbm_2017 .pdf"" target="_blank" rel="nofollow">https://virtualtrials.com/pdf2017/treatment_options_gbm_2017 target="_blank" rel="nofollow">https://virtualtrials.com/pdf2017/treatment_options_gbm_2017

I found these to be the most helpful in looking at what to put my mom on and helped to figure out the dosages. Hope this is helpful to you.

Hi @apenrod,

Thanks so much for your response and help. I'm going to take my mum to the Care Oncology Clinic here in London as I'm too stressed and scared to administer anything to her that I don't understand.

Thanks again,

Jen

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