Any Survivors?Ovarian Serous HighGrade Stage3C

4 Posts | Page(s): 1 

Any Survivors?Ovarian Serous HighGrade Stage3C

by BeckyandKent on Tue Oct 02, 2018 12:43 AM

Quote | Reply
Hi I have just been diagnosed September 18, 2018 with Ovarian Cancer Serous High Grade Stage IIIC. Went in for an oopherectomy, simple 45 minute surgery and awoke 5 hours later with 12 malignant tumers removed, as well as my uterus, ovaries, Fallopian tubes, cervix, half of my vagina, and entire omentum. I am 55 . I have been quickly moved along to chemotherapy, getting my port tomorrow. So Carboplatin and Taxol will start next week. My insides feel torn apart. I did get my staples out today...have a surgical scar from my pubic bone to diaphragm. Oh also removed my belly button...malagnant. So what I know of this type of cancer is that my husband’s first wife died after a 6 year fight with ovarian. Is survival improved? Same chemotherapy is being used, my husband told me. I have a lot of life to live. Daughter getting married, many travels scheduled. And no one seems to talk about sex...is that gone with half of a vagina, or just short? Bad humor I know. My husband is so sweet insists that is the last of our problems. Probably so, but I still want to live. How long have others made it through?

RE: Any Survivors?Ovarian Serous HighGrade Stage3C

by Barb3897 on Thu Oct 04, 2018 05:03 PM

Quote | Reply

I did not get the exact diagnosis you did. Mine got complicated and misdiagnosed as colon cancer because I had mass in colon.  Then told it was Primary Peritoneal, then final and correct dx was OC.  This was October, 2017.  First surgery removed mass and peritoneneum.  Had carbo/taxol once a week for 3 months in prep for second surgery to remove ovaries and tubes, I had a partial when I was 37.  Mind you, I am now 78.  Second surgery was Salpingectomy, March 29.  They found no Cancer.  Considered to be in remission.  My CA-125 continues to go down from original 168 to 27 now.  Single digits are the target.  Just had check up last week and all is good.  Have same scar, no belly button, whole abdomen skin is still sensitive.   I have gained back 8 of the 20 lbs I lost.  Some of that was acites....fluid build up in abdomen.  I was given a good outlook but reminded that OC has an 80% reoccurance rate.  So far so good.  I have other issues to deal with so I am not as active as before, but I consider my recovery a good one, so does my doctor.  You are much younger so your chances are much better, for sure!  I am having port removed next week as it hurts me.  Surgeon wanted me to keep it in case I needed chemo in future but I have refused to have any more chemo (because of my age, not worth the suffering).  My husband is constantly wanting sex, yes, it still happens at our age!  I have absolutely no interest whatsoever and even last week, the exam hurt me, so I just shy away from it.  I have vaginal cream to insert but hurts to even do that.  Be active, eat well, NO STRESS, which has been my enemy, and wishing you all the best.  You can do it!  Many, many women have survived this.

RE: Any Survivors?Ovarian Serous HighGrade Stage3C

by duygu on Mon Oct 08, 2018 10:49 AM

Quote | Reply

Study the site of chrisbeatcancer.com thoroughly. Juicing and green smoothies and  Vitamin d are the Key.

RE: Any Survivors?Ovarian Serous HighGrade Stage3C

by BeckyandKent on Thu Oct 18, 2018 12:53 PM

Quote | Reply
Thank you Barb, Your reply was helpful. It gives me hope that you are doing so well. I have many changes ahead. The issue of traditional sex with my husband, I am afraid will be out of the question due to the malaignancy extending down to vagina and now having no entry point . We are being much more affectionate in other ways. He is a very patient man. Thank you. It is good to speak to someone. It seems like all I do is cry. Becky
4 Posts | Page(s): 1 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.