CREON Delivery to PEG Tube

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CREON Delivery to PEG Tube

by tjohnson on Sun Oct 21, 2018 02:36 PM

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My husband has had his share of health problems over the years but nothing compares to his recent Stage 4 Non-Hodgkin's Lymphoma diagnosis.  Historically, he was diagnosed with Diabetes, high blood pressure, glaucoma, and anxiety. This is a man that is only 56 years old!  My concern today is that he spent 26 days in ICU, 36 days hospitalized and is currently in a skilled nursing/rehab facility.  He has PEG tube in his stomach because he cannot swallow or speak.  His vocal cords are paralyzed, perhaps due to be intubated for several weeks.  The skilled nursing facility is having difficulty delivering the proper dose of Creon to his through tube feeding.  They are trying to dissolve the Creon in water, and it doesn't dissolve.  When they inject it, it sometimes clogs the tubing.  I tried telling them to research dissolving the Creon with baking soda and warm water and allowing it to sit for 15 minutes, but they say they cannot do "anything without an order".  As of yesterday, because of significant residual contents in his stomach (GRV - Gastric Residual Volume), they have suspended feeding him (which yesterday was at least 18 hours without eating). I am going there today and will find out if they have started feeding him again.  Would it defy logic that a diabetic man, NEEDS to have food?  Doesn't a cancer patient NEED food? His glucose is off the chart due to a combination of things but this nursing facility just shoots him full of insulin trying to get to a reasonable glucose reading.  The Jevity 1.5 they are feeding him (when they do feed him) is full of sugar on top of it.  Doesn't cancer feed on sugar?  He just had his third round of chemo and all of this happening is justifiably upsetting.  Can someone offer me a resolution to how to get this man fed, with his creon throug his PEG and to maintain a decent blood sugar level?

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