My dad

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My dad

by ness7432 on Tue Jan 29, 2019 10:24 AM

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I just want to tell my dad's story, in hopes maybe someone has a similar experience or just to get it off my chest. My dad is 62, and was diagnosed with Stage IV melanoma that already spread to his lungs and brain before we found it. It was found because he was acting strange for about a week or two last summer, forgetting things, his mood was distant, he was definitely not himself and doing things that didn't make sense.  I had my mom bring him to the ER and low and behold he had 6 tumors in his brain. They removed 4 with surgery. He recovered from surgery fairly well but ended up in ICU for 12 days with pneumonia, and he lost most of his muscle mass and strength. He developed a blood clot, then bleeding uclers, and had to have a blood clot filter put in. A month after surgery when he was about to go home from the ICU, the MRI showed that his brain was full of more mets. He is BRAF+ so they started him on Mekinist and Tafinlar, which started to shrink tumors and hold others at bay. That and steroids made him stronger. He was able to get around himself and things looked promising. We were able to share the holidays with him. However, I really haven't seen my dad since late July. They redid the MRI in the beginning of January and it showed many more new lesions. The combo stopped working. We just started WBRT (4 of 10 treatments) and even after the first one he has not been the same. He has either declined rapidly from tumor growth or responding terribly with swelling from treatment. They upped the steroid dose but it is not helping. He is back to sleeping most of the day, seeing and hearing things, is too weak to get around, is falling, forgetting words and just cognitively not well at all.  His oncologist has said there is not much more we can do, the other drug combo ipi/nivo is far too compromising for his condition. They say as long as I can get him into the car and the office to continue the radiation but even with that we maybe have 4 to 6 weeks and mentioned hospice.

My family is heartbroken. My dad is everything to this family and it is so hard to watch him go through this, and heartbreaking to imagine what is coming the next few weeks. Any thoughts, advice, or prayers are appreciated.


Thank you.

RE: My dad

by Wilworth on Mon Feb 17, 2020 04:30 AM

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Hello Ness7432,    It is very hard to watch a close family member deal with all the suffering in dealing with serious cancer treatment. No one has any control over much of anything. You feel helpless. I am glad you were able to vent. . .  that helps you a bit. My wife died seven years ago from Multilpe Myeloma only 21 months after diagnosos. She was a chemo nurse and only 57 years old. I tell myself that God rewarded her by taking her to Heaven. That's about the only way I can explain it. I wish I knew what He has in store for us. I wish God's peace to your family and I will pray for you. Take care.     Wilworth 

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