RE: Urachal Cancer

3 Posts | Page(s): 1 

RE: Urachal Cancer

by MarksMom on Thu Feb 14, 2019 02:00 PM

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Three weeks ago our son Mark, age 40, had his first CT scan since his en bloc resection. It showed what the radiologist, not checking the patient's gender, characterized as possibly a "cystic lesion arising from the ovary or possibly a cystic external iliac nodal metastasis." It measured 3.75 cm. Mark's oncologist has recommended a follow-up CT in two months and feels it is most likely a residual liquid-filled cyst from surgery, because it shows none of the usual characteristics of a cancerous mass. If tt shows growth in two months, then it is cancerous. I would to hear comments regarding questions we should ask, possible outcomes, etc. i know, when Mark saw Dr. Seifker-Radtke at M.D. Anderson last year, she said any recurrence, particularly in the lymphatic system, meant Mark is Stage 4 and there are no further options. Thanks so much.

RE: Urachal Cancer

by Fiona2020 on Sun Dec 22, 2019 05:23 PM

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On Feb 14, 2019 2:00 PM MarksMom wrote:

Three weeks ago our son Mark, age 40, had his first CT scan since his en bloc resection. It showed what the radiologist, not checking the patient's gender, characterized as possibly a "cystic lesion arising from the ovary or possibly a cystic external iliac nodal metastasis." It measured 3.75 cm. Mark's oncologist has recommended a follow-up CT in two months and feels it is most likely a residual liquid-filled cyst from surgery, because it shows none of the usual characteristics of a cancerous mass. If tt shows growth in two months, then it is cancerous. I would to hear comments regarding questions we should ask, possible outcomes, etc. i know, when Mark saw Dr. Seifker-Radtke at M.D. Anderson last year, she said any recurrence, particularly in the lymphatic system, meant Mark is Stage 4 and there are no further options. Thanks so much.

I have lung mets from UC and will start w Dr Seifker mid January on 5 days 5FU/leukovorin, Cisplatin and Gemcitabine w 2 weeks off. What chemo regime did you all experience and what were side effects/results? Can anyone w this reigme provide insight?

Hope you are not on site because Mark is cancer free

RE: Urachal Cancer

by MarksMom on Sun Dec 22, 2019 05:39 PM

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Mark started this regimen, wearing a pump the week of his infusions for the 5fu. He got through three of the proposed six infusions, but, the week of the third infusion got sick enough that he was hospitalized twice, each time for four days (the end of that week) and, starting the next Tuesday, the following week. He did not have any more infusions. He is now 19 months cancer free, counting from the date of his en bloc surgery. He continues to do pretty well, still gets tired, is still followed for some issues and, of course, for the cancer. His next CT scan is April and, if it is clear and nothing has changed, hewill go to one a year. He does have to have a hernia repair sometime in the next few months — it appeared after the surgery but that is more from his having Williams Symdrome and its microdeletion of the elastin gene, than his cancer or the surgery. I celebrate it everyday.
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