Caregiving to parent with GBM stage 4

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Caregiving to parent with GBM stage 4

by brennastonge on Mon Feb 25, 2019 12:43 AM

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I am the main caregiver to my mom who was diagnosed with Glioblastoma Stage 4 back in 2017. Since she has had two tumor resections, during the send surgery in January, surgeons were only able to remove 80% of the tumor. She has not been able to be alone and is needing 24 HR care; not able to communicate at all. As I am the only daughter in the area I had to put my life on hold, I have not been able to work for 3 weeks as I am needing to be with my mother all day. I need help in finding more information on assistance for my mother as I do need to make a living for myself. Has anyone had any imformation that could help me? Anything would be greatly appreciated. 

RE: Caregiving to parent with GBM stage 4

by ljayr on Thu Feb 28, 2019 04:18 PM

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Hi brennastonge,

I'm sorry for what you are going through with your mom.  It is a hard journey, but please be assured of this...you will never regret all that you are doing for her.

Is the Glioblastoma cancerous?  I'm assuming it is since you have said it is Stage 4...???  The American Cancer Society is a great source of resources.  My brother passed away from a rare sinus cancer in February, 2017.  The ACS patient navigator had given our family the ACS resources list along with the following:

  • American Academy of Hospice and Palliative Medicine

aahpm.org

  • Compassion & Choices

800-247-7421, compassionandchoices.org

  • National Association for Home Care and Hospice

nahc.org

  • The National Hospice and Palliative Care Organization
Also...I'm not sure how old your mom is, but did she qualify for disability and the disability benefits?  That would help with some care giver expenses.
The American Cancer Society was a great source of info for our family in our time of need.  Perhaps your local ACS can help...that is, if it is cancer.
I'm sorry I don't know much about Glioblastoma.  I do know a ton about sinus cancer, unfortunately.  More than I ever wished to know.
Hang in there, and keep asking questions.  This is a great site.  
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