My mom is dying

6 Posts | Page(s): 1 

My mom is dying

by Trtlman on Sat Apr 06, 2019 11:08 PM

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I registered for this site a month ago after her diagnosis but never posted not knowing what to say. The last few years she’s been having issues with stomach and bladder problems and last year it got to a point she had to see a doctor. A year of seeing doctors and they couldn’t figure out what was wrong. Her stomach and bladder were healthy. They put a bladder implant in her and did a stomach stapling hoping to fix the symptoms not realizing the symptoms were literally in her head. I looked it up after we found out, those are symptoms of brain cancer. Glioblastoma, that’s what we found out last month after she fell and we took her to the ER. They kept her three weeks and she is home now. It’s bad, stage 4, absolutely nothing will help, say your goodbyes you’re going to be dead in a few months kind of cancer. She is on hospice care at home just waiting to die. We decided to skip on any treatment because the pain and sickness it would cause wasn’t worth adding a couple extra miserable months plus if we did that she’d have to be in a care centered a few more weeks. This was her idea and we backed her up on it. I wouldn’t want to prolong it either if I were her. There was a good chance chemo and radiation wouldn’t even help anyhow. What really sucks is first they should have figured this out a year ago and second they were never very straight with us. At one point we’re told she had 1-2 years, then a week later we are told if she does chemo less than 6 months. Since we decided against any treatment we have no idea how long. This is just more a vent post as nothing can be done but to wait for the inevitable. Thank you for taking your time reading this. I’ll keep you all updated if you want.

RE: My mom is dying

by Trtlman on Sat Apr 06, 2019 11:11 PM

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And to add on a bit more, there are two tumors. The main one was unacceptable so I guess it was kind of lucky there was a second one. Without the second one we wouldn’t have had the answers we have as number one couldn’t be biopsied.

RE: My mom is dying

by Momasita85 on Sun Apr 07, 2019 01:51 AM

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Hi I am new to this site and I am just sending my support in your situation, I know you are dealing with an emotional rollercoaster of feelings, depression, crying, not knowing where to turn and friends do not know what to say at times. Just know you are not alone in your feelings. My Mom recently had a large bladder mass removed. At first they said she had a UTI, got meds for that, blood in urine continued and they had a CT scan and found the mass, we just had the surgery to remove mass the other day and waiting for pathology. I don't understand medical info at all, how can tests taken miss things? I am sorry you are dealing with all of this, I hope you have a good family support system. My friends have been amazing in all of this. Prayers to you and your family

RE: My mom is dying

by Trtlman on Sun Apr 07, 2019 12:34 PM

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Thank you

RE: My mom is dying

by RodgerMac on Mon Apr 08, 2019 12:59 AM

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I lose my wife of 35 years sixteen months ago. I hope whom ever is providing care is making her comfortable. She doesn’t needlessly need to suffer. I had to fight tooth and nail with doctors to finally get pain meds and anti-anxiety meds that actually did something for her. My biggest regret when caring for my wife was I waited to long to bring hospice on board (Less than 24 hours before her passing). Here in Missouri hospice could order and change and update her drugs using their own staff. Sorry about your mom. Rodger

RE: My mom is dying

by txfighter on Wed Apr 10, 2019 12:40 AM

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I just don’t know what to say. I am so very, very sorry about your mom.
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