Living with VIN 3

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Living with VIN 3

by funnygirl on Sun Apr 07, 2019 01:01 AM

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Hello everyone,

    I am currently healing from my third surgerynfor high grade VIN 3. Both laser and removal was done. I was diagnosed only two years ago and the stress builds every day.  The biggest area infected has been my clitorus and surrounding area. This makes the pain of healing incredable, not to mention the fear of my doctor wanting to take another biopsy at my next check-up!

    I am fortunate to have a very supportive husband who ensures me daily that he loves me and finds me sexy. However, I still can't stop beating myself up and feeling "gross". I am happy I found this chat group. I spent a while reading through your stories and responses, and it gave me the cinfidence to write about my own situation.

  I feel aa though I am being slowlycut to pieces. The very idea of being sexual active again brings me to tears.  My family knows what I have gone through, but none of them understand or could offer an ear. Besides my husband of course. But, I'm afraid to let him see, or how different it will feel. I really hate that I cannot exercise while I'm healing. That was my best stress release! I just can't feel like a worthless lump on the couch while I heal.

Thaks for listening

RE: Living with VIN 3

by Sdtoporek on Thu Apr 11, 2019 04:40 PM

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I was diagnosed with VIN 3 in 2016.  Had the entire labia minora removed.  I was cut and lasered.  OW!  Sewn together and superglued.  I was diagnosed again in 2017 and 2018.  Each time the doctor removed more tissue.  Mostly around the clitoris and uretha.  I joke with my sister that it is cavernous down there!  She too has had VIN 3 but 15 years ago she had it turn into cervical cancer, uterine cancer and colon cancer.  She is a survivor for sure.  She just had more surgery two weeks ago.  A 3 inch by 1.5 inch area removed from ineer and outer labia.  Do not feel gross!  Keep your chin up and say that you will get through this!  Don't belittle yourself!  We are all individuals and have different bodies.  My husband totally understands 100% and sympathises with me.  There are other ways to be with each other.

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