Lung cancer need understand of everything

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Lung cancer need understand of everything

by CS2019 on Sat May 25, 2019 04:38 AM

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Hi I am here due to my mom 

She has recently been hospitalized and we have received all kinds of different information from several doctors but I am still left with a lot of questions. First several of the DR  that made up her team have referred to the situation as lung cancer but kind of contradicted themselves due to waiting for the biopsy results. The term used was after viewing the CT scan and given the symptoms and medical professionals opinion this is lung cancer. (mind you they found 2 large "masses"  in her lungs )  along with other health issues which may or may not be related to the so called cancer.   They even put her in the wing of the hospital where cancer patients are cared for.  She has been in the hospital for a week and her condition deteriorated rapidly.  She can not eat I mean really nothing the smell of food makes her nauseous. She lives off of icechips, I try pushing fluids mainly water that's all I can get her to drink I got a few sips of ensure not even a quarter of the bottle. And a few bits of a popsicle.  She can not breath properly uses oxygen and can not go very far even with oxygen. Shes in pain and not doing well at all for someone who was running up and down stairs a week and a half ago.   I dont understand the doctors stated they would have results with in 24 hrs but a full  result with in 5 to 7 days it's been 3 days and no answers unless they told her already and she has not told us but her health concerns and conditions have been discussed open umung my self and sisters with her present and no objections to our involvement with medical knowledge.  Wouldn't the drs have an answer by now  and wouldnt all  the doctkrs be on the same page? Why are some dr in her team playing it down while others are clearly saying cancer?  And given her condition any one can see she is not ok.   I feel lost and somewhat confused with how doctors have handled things and explained things especially since there are several dr all with different views of the situation.  Mind you there was a hematologist , oncologist. Pulmonary dr, the ER Dr.  A resident dr and 2  other dr that made up her team. 

RE: Lung cancer need understand of everything

by PunkyD on Sun May 26, 2019 08:38 AM

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I am very sorry to hear about your Mom's diagnosis. It doesn't sound like all of the doctors are on the same page. It is difficult especially when there are many people involved. Each doctor is dealing with a different aspect of your mom's illness, and each one has a different personality and different way of dealing with their patient. Some doctors are more forthcoming with information and are keeping your mom's interest at top priority, and some maybe are not.

"The doctors stated they would have results with in 24 hrs but a full  result with in 5 to 7 days".  What does that mean?? What result will they have in 24 hours and why didn't you receive it? Which doctor of the team told you that you would have the answer in 24 hours? 

I think it is super important that you and your sisters should be your Mom's advocate and demand more answers. Hospitals are a very busy place, and sometimes you need to "bug" the doctors. If you are confused and have questions, you should definitely ask! Ask the nurses where is the doctor, and when can you talk to him. If your are not happy with the care, and they keep delaying and pushing you off,  you may want to think of going somewhere else. 

Good luck, and prayers for your Mom. 

RE: Lung cancer need understand of everything

by Annb1962 on Mon May 27, 2019 03:20 PM

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First, I am so sorry for what your mother and your family is going through. No one has the same symptoms, the same pain, or the same situation, however, I agree that all of the doctors need to be on the same page and talking with one another. Cancer, in any form, is nothing to mess around with and your Moms care team (all the Doctors, Oncologists, heamotologists, Pulmonary, Cardiac and all of the doctors need to be on the same page and read the same notes) so that they can treat your Mom together, as she is relying on this to help her overall health. And, you and your sisters need to continue to advocate for her when they are not listening or delivering as promised until you get some answers. Silence is not acceptable if they have promised a response back by a certain date. They may not have all of the answers, but they need to speak that to you and let you know that they are still testing in those areas that they need to -because- fill in the blanks, as they just don't know yet. Doctors, although highly more educated that the patient, need to communicate effectively to their patients to continue to gain their trust, that is their job 

I am speaking from experience on this matter both for myself and my father, who also had lung cancer. 

I am so grateful that you have family to support your mom. It would be a difficult and lonely road for her if she did not have that. 

Blessings to you and your family. Keep probing those doctors until they turn around and speak to you about whats going on. 

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