Urachal cancer survivors

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Urachal cancer survivors

by Schuls on Tue Jun 11, 2019 12:45 PM

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If you have urachal cancer and have lived beyond 3 years please reply with what treatments you have had. I have been to the 5 major Drs in USA and told no treatmebtbother than the mixture md andrrson chemos everyone however prognosis still less than 3 years. Looking for hope

RE: Urachal cancer survivors

by Fiona2020 on Thu Dec 19, 2019 01:27 PM

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ours is a nasty cancer. What treatment have you done?

I was fully healthy 60 yo when i had part cystectomy and en bloc removal of urachas / navel and nodes 2017 at MD Anderson.  2 y post op and without any symptoms, i now have terminal lung mets and am trying to decide if multiple rounds of chemo is worth it just to slow growth (combo gemcitabine, cicplatin, 5FU/Leucovorin).

Can anyone tell me quality of life undergoing THIS regime? What else should i know/consider?

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