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Urachal cancer UK

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Urachal cancer UK

by helenm201 on Sun Sep 08, 2019 03:39 PM

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Hello,

My mum has just been diagnosed with urachal adenocarcinoma.  The urologist at Lincoln has no real idea about this cancer, and os is referring her to Leicester where he expects a partial cystoctomy.  Has anyone any experience of doctors or hospitals in the UK dealing with this stype of cancer?  Thanks, Helen

RE: Urachal cancer UK

by Fiona2020 on Thu Dec 19, 2019 01:12 PM

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I was fully healthy 60 yo when i had part cystectomy and en bloc removal of urachas / navel and nodes 2017 at MD Anderson Houston TX. All these tissues MUST be removed. After 3 mo at home w lots of abd swelling / pain and gi discomfort i could return to work desk. 6 mo after i had near normal energy thanks to husband's care :-).

now, 2 y post op i have terminal lung mets and am trying to decide if multiple rounds of chemo is worth it just to slow growth (combo gemcitabine, cicplatin, 5FU/Leucovorin) .

Can anyone tell me quality of life undergoing THIS regime? what else should i know/consider?

RE: Urachal cancer UK

by Kevinquinn77 on Sat Apr 04, 2020 09:06 PM

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Hi there, 

 Im doing chemo and its not bad.what stage was your cancer?

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