Stage 4 metastatic renal cell

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Stage 4 metastatic renal cell

by Mnf744 on Thu Oct 24, 2019 08:29 PM

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I feel like I’m losing my mind. My sister has stage for me to static renal cell carcinoma and I am her caregiver. I don’t know how to do this. They attempted immunotherapy which turned on her body and in May we almost lost her because all of her organs swole. There is no more treatment. The pain she’s experiencing in her lower back and pelvis because it’s in the bone is causing her to require lots of pain medication. She is just coming off of steroids which she has been on since May, is taking the required pain medication, and is suffering from depression and the combination are causing a list of symptoms I don’t even know how to navigate through. She had a good week three weeks ago. She was able to get up and she got out it was moderately active which puts false hope in my mind. So when she has two bad weeks where she can’t stay awake and where she’s sick and vomiting and in pain it’s hard for my mind to comprehend. It’s difficult enough to try and care for her without having to fight my feelings of resentment for those who won’t step up for me or her in anyway. I want to shoulder this. I want to take care of her. But sometimes I feel like I need someone there for me. And then I feel self-centered and selfish for worrying about myself. This is a pit that sucks not only the one diagnosed with cancer but also for those who love them and want to be there support system. I don’t know how to do this. I don’t know how any of you are doing this. I’m crying right now for all of us. Because this sucks. Thank you for enduring my crazy Rambling

RE: Stage 4 metastatic renal cell

by sidjones1 on Thu Dec 19, 2019 06:43 PM

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Hi, I am just seeing your message today and feel compelled to respond. I sure hope and pray things have gotten better at this point for your sister. I too have stage 4 renal cancer that has spread to my bones. It is widespread at this point and involves my hip, pelvis, spine, ribs and shoulders. I was diagnosed on 8-31-2018.

The first month was a testing to see where it was and what type of cancer it was. I was lucky because mine fell within the PDL1 marker, which meant I could have imunotherapy. I started on Opdivo & Yervoy treatment, as well as a bone hardening acid called Zometa. The Opdivo & Yervoy treatments were once a month x 4 months and the Zometa was once every 3-4 months. For pain I used Cellebrex and Narco.

My first 2 months were HORRIBLE. The combination of Opdivo & Yervoy caused me to have afib and hospitalized me twice. I was pretty much bed bound and weak and miserable. After 2 treatments, the doctor dropped the Yervoy and I had only the Opdivo every month via IV and the Zometa via IV every 3-4 months.This was so much better and I started getting my strength back. Within, a month or so I was walking again and able to function and leave the house again.

It has been a year and several months now. The Opdivo has kept me in check and they are even seeing new bone growth in my CT scans (which are done every 3 months). I am able to enjoy life again and do things with my friends and family.

I pray your sister's condition is improving. Wishing you only the best. Kevin :-)

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