Pancreatic cancer and Tumor markers

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Pancreatic cancer and Tumor markers

by Jackiej10152011 on Thu Nov 14, 2019 05:53 AM

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I have been going through all kinds of testing for pancreatic cancer such as ct scans  ultrasounds xrays and much more. All of them have come back negative. However the tumor markers did come back 6times higher than normal. I am still losing weight, in pain 95% of the time. my back and stomach  hurt I have no appetite. Nause, vomiting, and much more. I guess my question is, is it possible to have pancreatic cancer and no tumor being present?

RE: Pancreatic cancer and Tumor markers

by Jackiej10152011 on Thu Nov 14, 2019 06:21 AM

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I probably needed to tell you that the doctor I was seeing told me that it is probably pancreatic cancer but we will have to just wait and see if anything changes. 

RE: Pancreatic cancer and Tumor markers

by PunkyD on Thu Nov 14, 2019 09:12 AM

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Dear Jackie,

I'm really sorry to hear about everything you are going through, and that you are suffering. I imagine that the uncertainly is also distressing. Regarding your question, in my opinion, the quick answer is yes. The fact of the matter is that pancreatic cancer is very hard to detect and diagnose due to its location. Often, when a tumor is finally visible, the cancer is very advanced.

I am not a doctor or a professional of any kind... though there has been pancreatic cancer in my family, so I have done some research. 

I can only recommend that you seek a second opinion, and try to get to the bottom of it (an official diagnosis, if it is cancer), and seek treatment as soon as possible, as opposed to "watching and waiting". 

Sending you much strength and prayers for the best possible situation. 

Sincerely,

Punky

RE: Pancreatic cancer and Tumor markers

by ToddlerFather on Thu Nov 14, 2019 08:38 PM

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Just CT or a PET-CT with FDG ? 

RE: Pancreatic cancer and Tumor markers

by Jackiej10152011 on Wed Nov 20, 2019 03:53 AM

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Yes just a regular ct scan. My insurance will NOT approve aPET scan because I do NOT  "OFFICIALLY " have a cancer diagnosis as of yet. I dont remember if I  told you before or not. But I  am a Breast cancer survivor and I know by the way I feel that something is going on. But I just dont know how or where to find the right help. Im also having trouble getting back on here to reply at times to. Sorry about being so negative but I  am about ready to just give up.

RE: Pancreatic cancer and Tumor markers

by Jackiej10152011 on Wed Nov 20, 2019 03:55 AM

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Yes just a regular ct scan. My insurance will NOT approve aPET scan because I do NOT  "OFFICIALLY " have a cancer diagnosis as of yet. I dont remember if I  told you before or not. But I  am a Breast cancer survivor and I know by the way I feel that something is going on. But I just dont know how or where to find the right help. Im also having trouble getting back on here to reply at times to. Sorry about being so negative but I  am about ready to just give up.

RE: Pancreatic cancer and Tumor markers

by vlk1216 on Sat Jan 04, 2020 02:20 AM

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On Nov 14, 2019 5:53 AM Jackiej10152011 wrote:

I have been going through all kinds of testing for pancreatic cancer such as ct scans  ultrasounds xrays and much more. All of them have come back negative. However the tumor markers did come back 6times higher than normal. I am still losing weight, in pain 95% of the time. my back and stomach  hurt I have no appetite. Nause, vomiting, and much more. I guess my question is, is it possible to have pancreatic cancer and no tumor being present?

Hey Jackie,

sorry to hear what you've been through. I'm not in medical field but my dad had a very similar experience in June 2019 that i would like to share with you.
My dad was having back pain and followed by stomachache (which was first diagnosis as stomach ulcer).
After taking few medicines for 3 weeks, his pain was getting worse. So they sent him for ultrasound and CT scan which all stated negative. But his CA199 was really high like 3600 (normally is 36).
So a different doctor had an another look of his CT scan and found something. He then orded a PETCT for my dad, and this time they found the tumour on the head of pancrease. (1.8cm )


My dad had Whipple in July, but the surgeon found a few lymth nodes.
I hope this helps.
Dont just wait and see, look for a second opinion to double check your CT.

RE: Pancreatic cancer and Tumor markers

by Jackiej10152011 on Sat Jan 04, 2020 04:19 AM

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On Jan 04, 2020 2:20 AM vlk1216 wrote:

On Nov 14, 2019 5:53 AM Jackiej10152011 wrote:

I have been going through all kinds of testing for pancreatic cancer such as ct scans  ultrasounds xrays and much more. All of them have come back negative. However the tumor markers did come back 6times higher than normal. I am still losing weight, in pain 95% of the time. my back and stomach  hurt I have no appetite. Nause, vomiting, and much more. I guess my question is, is it possible to have pancreatic cancer and no tumor being present?

Hey Jackie,

sorry to hear what you've been through. I'm not in medical field but my dad had a very similar experience in June 2019 that i would like to share with you.
My dad was having back pain and followed by stomachache (which was first diagnosis as stomach ulcer).
After taking few medicines for 3 weeks, his pain was getting worse. So they sent him for ultrasound and CT scan which all stated negative. But his CA199 was really high like 3600 (normally is 36).
So a different doctor had an another look of his CT scan and found something. He then orded a PETCT for my dad, and this time they found the tumour on the head of pancrease. (1.8cm )


My dad had Whipple in July, but the surgeon found a few lymth nodes.
I hope this helps.
Dont just wait and see, look for a second opinion to double check your CT.

Thank you everybody has helped a lot. I Finally got a PET SCAN approved. Had it done 12/31/19 .waiting for my Dr to call me. However the center where I had it done the Dr said then were 2 places that he was concerned about.  My pancreas has something about 1/2 cm and the liver has HOT SPOTS ALL THROUGH OUT IT. So now If my PCPwould call me I could figure out what to do or where to go from here. Prayers to all of you.

RE: Pancreatic cancer and Tumor markers

by ToddlerFather on Sun Jan 05, 2020 05:47 AM

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Glad that you finally got the exam needed for your diagnosis. 

Note that PET scan highlights anything taking too much sugar, but sometimes other issues like infections or cicatrizations also take a lot of sugar. Having said that, you are likely looking - and I'm guessing you already figured that out - at a primary pancreatic cancer with liver metastases from that primary pancreatic cancer. While there are other possibilities, I believe your doctor will be able to rule all the others out using the other exams and direct examination of you. 

Confirming whatever diagnosis your PCP comes to is key now, since both conditions require urgent attention. 

Hope that, to the extent possible, you can keep us updated of your diagnosis and course of action, and my prayers to you as well. 

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