Just diagnosed

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Just diagnosed

by Mustang2005 on Fri Jan 10, 2020 02:22 AM

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I was just diagnosed 2 days ago. They say it has spread to my liver but are not sure how badly it has spread.  I had a biopsy of both my esophagus and liver but results aren't in yet. Has anyone had it spread to the liver and if so what has the prognosis been.  I have my first appointment with a oncologist next week. He said he will have the results of the liver biopsy and we will talk about treatment plans at that time. Any suggestions? Advice on questions I should be asking?  Thank you in advance for any suggestions you may have.

RE: Just diagnosed

by Fnixon on Sat Feb 01, 2020 12:04 AM

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On Jan 10, 2020 2:22 AM Mustang2005 wrote:

I was just diagnosed 2 days ago. They say it has spread to my liver but are not sure how badly it has spread.  I had a biopsy of both my esophagus and liver but results aren't in yet. Has anyone had it spread to the liver and if so what has the prognosis been.  I have my first appointment with a oncologist next week. He said he will have the results of the liver biopsy and we will talk about treatment plans at that time. Any suggestions? Advice on questions I should be asking?  Thank you in advance for any suggestions you may have.

 I don't have suggestions on what questions to ask but I would recommend taking along another person. My wife went with me to my appointments and without her I would have missed some of the information given to me. I wish you all the best with your journey. Mine was all positive, chemo and radiation and surgery. I am now five years out and living a completely normal life. I recently became a grandfather and it is so nice to be here!

RE: Just diagnosed

by jojoalexis on Mon Feb 10, 2020 02:58 PM

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Hello, I am sorry for what you are going through. what treatment did you start? My husband has been stage 4 since Fall of 2016 age 46. almost a full year of heavy chemo followed by some radiation. He has been stable on immunotherapy until recently as it seems to be spreading again in his liver. More chemo to start this week. I hope you are keeping up with your diet and exercise and staying strong.  

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