Severe side effects - stage 4 colon/liver

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Severe side effects - stage 4 colon/liver

by RomaA on Thu Jan 16, 2020 06:48 PM

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Hi all,

I'm new to the site. I was diagnosed with Stage 4 colon cancer that metastisized with 5 tumors on my liver.  Since mid May, 2019, I had over a month of radiation (what fun!) and Folfox chemotherapy. I don't have issues with vomiting, thankfully, but I have congested heart failure and have heart palpitations and issues where I become almost comatose, can't eat, can hardly drink and have a huge amount of pain, diarhea, etc. My sister is my caretaker and it scares her half to death. When I have chemo on a Wednesday, they send me home with a motorized bag that gives me additional chemo until Friday when I have to go back in to have it removed. The Doctor has lowered my chemo due to all of my complications but I worry that by lowering it, my chances of further spread are increased. I would appreciate any suggestions you might have. Thanks much.

RE: Severe side effects - stage 4 colon/liver

by JojoB on Fri Jan 17, 2020 09:38 PM

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Hello - My Mom had similar side effects from her chemo.   For the diarrhea, my Mom received a prescription for Lomotil.  Lomotil is synergistic with Imodium (over-the-counter diarrhea med).  Lomotil is effective at decreasing intestinal peristalsis. Imodium is effective at increasing absorption. My Mom's schedule prescribed schedule was: 15 minutes before breakfast – take 2 Lomotil. Mid morning – take 2 Imodium. 15 minutes before lunch – take 2 Lomotil. Mid-afternoon– take 2 Imodium. 15 minutes before evening meal – take 2 Lomotil. Early evening – take 2 Imodium. Just before bedtime – take 2 Lomotil.  Be sure to talk to your oncologist to receive a schedule tailored for you.  To help with dehydration, my Mom received twice weekly IV fluids and electrolytes at the oncologist's office.  Please ask your oncologist for IV fluids; you will feel so much better!  To make the most of the liquids she was able to consume at home to fight the dehydration, she used "Drip Drop" drink mixes (DripDrop | Oral Rehydration Solution | ORS Packets & Electrolyte Drink).   As you know, nutrition is very important.  Perhaps you might consider "Liquid Hope",  a shelf stable organic whole food that can be used as in feeding tubes or as an oral meal replacement (Shop - Functional Formularies).  Please don't worry about the reduction in chemo medication; my Mom's was reduced twice due to side effects and neutropenic fever.  Remember that the starting chemo dosage is typically the maximum tolerated dose and there is wiggle room in the range that will still be effective.  My best to you!

RE: Severe side effects - stage 4 colon/liver

by RomaA on Sat Jan 18, 2020 08:22 PM

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Thank you so much. I appreciate the information and will be researching it. Have a great day.

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