Need Support

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Need Support

by Rebeccalynn on Mon Jan 31, 2005 12:00 AM

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I had a stroke in 1992, one week from my 15th birthday. Exactly, two months later I had open heart surgery. I have been well over the past 12-13 years. I have two boys. I am happily married. This past Sunday I was having pain in my side, so my husband took me to the hospital. While I was there I had many tests including MRI's. The doctors saw that I have astrocytoma. They informed me it is benign, but how do they know. Any information you can give me will be very helpful. Thanks, Becky

Astrocytoma

by Jessica1219 on Wed Feb 16, 2005 12:00 AM

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Hi. I just had brain surgery for a pleomorhic xanthoastrocytoma. I guess it's pretty rare, but it's a type of astrocytoma. I don't understand how your doctor can just say its benign, did you have a biopsy? My doctors actually told me that my tumor was benign, but then later down the road said it was cancerous. well, if you have any questions, just ask. Jessica

Need Support

by Jamie_p_1 on Thu Feb 17, 2005 12:00 AM

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Hi Rebecca. I am sorry to hear of your recent diagnosis. My prayers will be with you. My fiance was diagnosed with a Grade II Astrocytoma on 1-26-05 after having mild headaches for about 2 months. They first told us that they believed the tumor was benign but after seeking a second opinion it was explained to us that the terms malignant/benign, when referring to the brain, are contradicting. When hearing benign you think "non-cancerous and slow growing/non-invasive" and malignant meaning "cancerous and fast growing". After doing a biopsy they discovered that his tumor does contain cancerous cells but it is slow growing. A tumor could also be "benign" as in non-cancerous but fast growing, which could be just as serious as a "malignant" tumor. I hope that all made sence... just FYI because that's been very difficult for us to understand. We have found that the terms benign/malignant also represent how fast or slow the tumor is growing. Anyways, to try and answer your question... we have been told that they can somewhat predict if a tumor contains cancerous cells by doing a CT/MRI with and without contrast. As I understand it, if there is alot of contrast (darker areas), then it is possible the tumor does contain cancerous cells. If it does not show much contrast, then it is considered a "benign" tumor. A biopsy is the only sure way of knowing. The first neurosurgeon we saw said Bradly had a "benign" tumor and said he saw no contrast. Our second opinion, who we chose to go with and who performed the biopsy, said (and pointed out to us) a little bit of contrast and it was he that explained the terms "benign and malignant" to us... and Bradly's tumor did show to be cancerous. I wish you and yours the very best. I hope that I didn't make things more confusing for you! God Bless, Jamie

Astrocytoma

by Rebeccalynn on Mon Feb 21, 2005 12:00 AM

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Jessica, I have been to my neurosurgeon. He does not think that I have a brain tumor. Him and my neurologist both think that it appeared that the right side of my brain was enlarged. Because I had an MRI in 1992 they saw that the left side had shrunk down...so they hope that it is all it is. Thank you for listening to me and I will continue to keep you in my prayers.

xanthoastrocytoma pleomorphic

by Sunhine_45 on Thu Feb 15, 2007 12:00 AM

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On 2/16/2005 Jessica1219 wrote:

Hi. I just had brain surgery for a pleomorhic xanthoastrocytoma. I guess it's pretty rare, but it's a type of astrocytoma. I don't understand how your doctor can just say its benign, did you have a biopsy? My doctors actually told me that my tumor was benign, but then later down the road said it was cancerous. well, if you have any questions, just ask. Jessica

 

                          i would like to find other people with this same diagnosis. 

RE: xanthoastrocytoma pleomorphic

by Sunhine_45 on Thu Feb 15, 2007 12:00 AM

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                I would like to find someone with this same diagnosis. Please reply back.

RE: xanthoastrocytoma pleomorphic

by Sunhine_45 on Thu Feb 15, 2007 12:00 AM

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                         I would like to find someone with this same diagnosis.
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