Husband Just Found Out he Has a Tumor on The Bladder

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Husband Just Found Out he Has a Tumor on The Bladder

by Sheilab on Tue Feb 22, 2005 12:00 AM

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My husband and I just found out today that he has a tumor on his bladder. He has had painful and difficult urination for a couple months now. He had a urine culture done and was prescribed high dose antibiotics for a urinary tract infection. Another doctor said his prostate was inflamed. Constant pain on urination and blood in his urine sent him to another urologist who determined that he has a tumor. He is not scheduled for a biopsy until next Wed. (He's been taking Advil for the pain, and this is a blood thinner.) I guess we will not know anything until then, but we are both very scared. I can't understand it, because he has never smoked, does not drink, never drinks coffee, rarely until now takes medication, does not work with hazardous chemicals, eats very well, is active - a runner, cyclist, swimmer, weight lifter - does not have a history of urniary infections. In December he was sick with bronchitis, as was I. Urinary problems followed. Years ago, I had a urinary tract infection following an upper respitory infection, so that is what we thought it was. He has been very healthy - no pain or any indication of a problem until December with the blood in the urine. He is 72 years old, but looks and acts much younger. I'm sorry if I'm rambling, but my question is, what should we expect and ask from here on out? We want to be as knowledgeable as possible. We've been told the urologist is one of the best the field. Any input you can provide will be very appreciated.

Husband Just Found......

by Henrietta on Wed Feb 23, 2005 12:00 AM

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You are both wondering "what to do now?" ...as did I last October. (I am message "Discuss with other", a couple of lines below yours on the message board.) My diagnosis came following an abdominal 'scan' and a cystoscopic exam where I could watch the oncologist examine the tumor in my bladder with his lighted scope. No pain. The surgery was done 8 days later, also through the urethra, so there is no "surgical wound" to heal which makes alot of difference in how you feel after. I also quit smoking the evening before my surgery and have been a "former" smoker now for a little over 4 months. I would ask for a copy of the lab report on your tumor after surgery, and to know both stage and phase after the tumor has been to the lab, because those 'labels' seem to determine type of follow-up treatment. Also, see if you can locate a cancer support group, because there is no one more understanding of fears and able to answer questions than those who have walked in your shoes. I found and attended my first a couple of weeks ago (50 miles from home) and those 10 folk (none bladder cancer) were winners and most supportive and helpful with information and understanding. I used the cancer.gov site, and the national institute of health site and the mayo clinic sites for helpful information. I am reading the Nutrition book available through CTCA by Dr. Quillin, and find it very helpful. You will learn as you go and be strong...others are out there wishing you well. hjtk

Pains in Back/Top of Thigh

by Sheilab on Thu Feb 24, 2005 12:00 AM

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Thank you so much for responding and for the info. Since your case sounds similar, I'd like to ask you if you had pain in your lower back, top of your thigh? This bothers him a lot. What prompted you to have an abdominal scan? Up until now, they were concerned about the prostate; one doctor told him it was swollen, but the current doctor said that he didn't see that. (This doctor comes highly recommended. It seems the people my husband knows who went to him have nothing negative to say about him. He is a "teaching doctor" at a research hospital. Would you still recommend a second opinion, and at what point?) When he had a blood test in early Jan., they said everything looked good, and his PSA count was extremely low (.79) Wouldn't that also be affected? How long did your surgery take? Did you stay overnight? How did you feel in the days afterward? Again, thank you for all your information.

Pains in Back....

by Henrietta on Fri Feb 25, 2005 12:00 AM

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One of the developments after my chemo began was a new heel spur, so I've not been doing the walking that I had done ( 2-4 miles a day) prior to the diagnosis. (I had two knee replacements in 8/01.) During the surgery they put a stint in from the kidney to the bladder, because of the placement of the 'stem' of my tumor. Due to that, they didn't want me to 'walk' so much after the surgery.....and that's why I think I have low back pain now. I'm using a heating pad on low to get to sleep. No pains in thighs. My friend said the surgeon came out to say the surgery went well and I was in recovery about 3 hours after I went in. Since the tumor was golf-ball sized and being 'sliced' thin enough to be 'washed out' through the urethra, it took awhile. Slept most of that day and stayed overnight because my bp is ALWAYS low....116/60 +/- but they wanted to monitor it . No pain pills necessary, except for a couple to get out of the hospital and into the car for the 2 hour drive home. The abdominal scan was one of the tests the first urologist wanted when I went to them with the symptom of bright blood in the toilet bowl. You drink lots of water and it goes away. It had happened a year ago and the local ER docs said it was probably hemmorhagic cystitis, but when it recurred a year later it was cancer. The urologist showed me the 'superficial' tumor ( the slices' from the abdominal scan) on the laptop in the examining room before she called in the Chief of Urololgic Oncology,(who would be my surgeon) for the cystoscopy. Ours is a highly regarded state teaching hospital also. My faith is good in their caliber of care and treatment. But I'm adding the nutrition piece because I am trained as a home economist and know the benefits of diet in recovery. When is your surgery scheduled? Keep me posted. hjtk

Sheila and Husband

by Rose_123 on Wed Aug 03, 2005 12:00 AM

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Hi, Don't you just want to scream, rant and rave!!! I did. My husband smoked and worked with chemicals but I still didn't want to accept the diagnosis. It is so scarey. We got on prayer lists and talked to several local people who are lving /survivors of this surgery. Most are working and doing well. Some were young when this was done for them. Some were older. I have since found out that even children can have this. Get on natural nutrition and lots of it. I think Cancer Centers can set you up on a good problem. You will want him as best as he can be before the surgery. And follow up after wards. Mine is only 57. The girl that gave us the best doctor and information was on lhy 30 when she had it. She did not smoke or work with chemicals. She is a teacher. Best wishes and lost of prayers to you and your husband. Rose

Udate Please

by Heart on Wed Sep 21, 2005 12:00 AM

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What is happened since you last wrote in? my father has bladder cancer and is scheduled for sugery soon. thanks DEb

Cancer

by Maryv on Sun Dec 04, 2005 12:00 AM

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hi my name is mary my dad just got diagnosed with transitional cell carcinoma high grade3.. we will know the stage on wed.. i am soworried about him my dad is 65 and was active until this thing came up we found out the day before thanksgiving.. i read your story. can you please tell me what is going on with your husband. i hope that he is doing ok now. this is just a big nightmare is there hope? my email is --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html --- good luck mary
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