I was diagnosed with VIN III

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I was diagnosed with VIN III

by guida on Wed Sep 26, 2007 12:00 AM

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I was wondering if anyone knows what I am in for.  My DR. recommends that I have Laser Vulvectomy for VIN.  I've had a biopsy in March of 2007.  Came back VIN II.  Then in July I had an excision because she did not get all with the biopsy.  I still had the condition in the surronding tissue and now it has gone from a VIN II to a VIN III.  She has scheduled Laser Vulvectomy.  I have also used the creme with no results.  It is still in the PRE-CANCER stage.  Am I doing the right thing?  She tells me I will be uncomfortable for awhile and needs sometime off of work, I sit a a desk all day.  She also tells me probably the reason I got this was my immune system was down since I have lost 70lbs.  I do feel good, but just scared.

RE: I was diagnosed with VIN III

by Confused910 on Wed Sep 26, 2007 12:00 AM

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Hi!

I cannot answer how the vulvectomy will be as I only had lasering done to remove an area that was VIN 3 back in June.  My dotcors told me that more than one surgery may be needed to get all of the pre cancer cells  and from doing research I have found that some will need more than one lasering before they get it all.  I also had an excision done at the same time that came back as VIN 1 and they told me they had clear margins for the excised area.  I find out on OCT 2 whether I need another laser surgery done.  A vulvectomy will be ALOT different than just lasering a small area as they are removing the vulva. 

One of my doctors did tell me that some women who have large areas affected with VIN do have to have vulvectomy done.  Ultimately it is your decision on whether you are doing the right thing.  All I can advise is to make an informed decision and if you aren't sure get second, third or fourth opinions.  Do what is best for you. 

 It is very stressful but if you have any doubts seek other opinions.  I am here if you need to talk.  I have found it helps greatly to be able to talk to other women who have this as we all know and understand what we all are going through.

 Keep your chin up and think positive!  Keep us posted.

:)

 

RE: I was diagnosed with VIN III

by babybear on Tue Oct 02, 2007 12:00 AM

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On 9/26/2007 guida wrote:

I was wondering if anyone knows what I am in for.  My DR. recommends that I have Laser Vulvectomy for VIN.  I've had a biopsy in March of 2007.  Came back VIN II.  Then in July I had an excision because she did not get all with the biopsy.  I still had the condition in the surronding tissue and now it has gone from a VIN II to a VIN III.  She has scheduled Laser Vulvectomy.  I have also used the creme with no results.  It is still in the PRE-CANCER stage.  Am I doing the right thing?  She tells me I will be uncomfortable for awhile and needs sometime off of work, I sit a a desk all day.  She also tells me probably the reason I got this was my immune system was down since I have lost 70lbs.  I do feel good, but just scared.

 

 Hi  , I  have the same  diagosed  .It's been almost  three years  of  treatment  for me  with  an acid base type that  only  keeps it away for  3 months at a time .But  i was told due to the stress of  the emotion side effect  removeal  was not  for me for i am only 28 as they say.I  was  wondering if any one dose remove  the cells  would you inform me of the  process  so i  may consider it ,the  going  and  coming back is  gettting to me .

RE: I was diagnosed with VIN III

by guida on Thu Oct 04, 2007 12:00 AM

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On 10/2/2007 babybear wrote:

 

On 9/26/2007 guida wrote:

I was wondering if anyone knows what I am in for.  My DR. recommends that I have Laser Vulvectomy for VIN.  I've had a biopsy in March of 2007.  Came back VIN II.  Then in July I had an excision because she did not get all with the biopsy.  I still had the condition in the surronding tissue and now it has gone from a VIN II to a VIN III.  She has scheduled Laser Vulvectomy.  I have also used the creme with no results.  It is still in the PRE-CANCER stage.  Am I doing the right thing?  She tells me I will be uncomfortable for awhile and needs sometime off of work, I sit a a desk all day.  She also tells me probably the reason I got this was my immune system was down since I have lost 70lbs.  I do feel good, but just scared.

Hi Again,

 I had the excision in July of this year and the VIN III was still on the margins.  October 23 I am scheduled for the laser vulvectomy.  My Dr. tells me if she can get it all It might never come back again.  I will have to go periodically for punch biopsies though.  I guess it could be worse.

Guida

 Hi  , I  have the same  diagosed  .It's been almost  three years  of  treatment  for me  with  an acid base type that  only  keeps it away for  3 months at a time .But  i was told due to the stress of  the emotion side effect  removeal  was not  for me for i am only 28 as they say.I  was  wondering if any one dose remove  the cells  would you inform me of the  process  so i  may consider it ,the  going  and  coming back is  gettting to me .

 

RE: I was diagnosed with VIN III

by Brensmom on Tue Nov 13, 2007 12:00 AM

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I would recommend getting a second and even third opinion. Never hurts. You need to feel comfortable with the decision you are making. I did and now I am grateful. Also do you really need a partial vulvectomy??? Has your doctor talked about wide local excision? Is the area labia minora or majora? I read in Dr Elizabeth Stewart's book (the V book) that the areas with hair laser surgery does not work well as HPV hides at the bottom of hair follicles. I am lucky that I am seeing Dr Stewart herself and few other specialist but whereever you are I am sure there are Doctors who specialize on this. Please feel good about any decision before doing anything too drastic.

All the best,
Esra

RE: I was diagnosed with VIN III

by OuisieBayouGal on Thu Nov 15, 2007 12:00 AM

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My sincere thoughts and prayers go out to you.  My 19 yr. old neice was just diagnosed with this today and we don't know what to expect...Her Dr. said it was from the sun....WTheck???  She is so young.  I had pre cancer of the cervix at her age....Had a hysterectomy, now I am ok.  But from what I have read this is somewhat different.  What do you know about this?

RE: I was diagnosed with VIN III

by OuisieBayouGal on Thu Nov 15, 2007 12:00 AM

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On 11/13/2007 Brensmom wrote:

I would recommend getting a second and even third opinion. Never hurts. You need to feel comfortable with the decision you are making. I did and now I am grateful. Also do you really need a partial vulvectomy??? Has your doctor talked about wide local excision? Is the area labia minora or majora? I read in Dr Elizabeth Stewart's book (the V book) that the areas with hair laser surgery does not work well as HPV hides at the bottom of hair follicles. I am lucky that I am seeing Dr Stewart herself and few other specialist but whereever you are I am sure there are Doctors who specialize on this. Please feel good about any decision before doing anything too drastic.

All the best,
Esra

Sounds like you have done your homework...Hang in there sweetie. I pray my neice gets more than one opinion.

RE: I was diagnosed with VIN III

by zabou on Sun Jan 23, 2011 08:45 PM

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Hi, I noted your message is old(2007) and I hope you are fine now. I was diagnosed with VIN3 20 years ago. I had laser on both labia minora and majora but over the years the virus came back ...with a vengence.  Not been able to bear it anymore I asked for advise but the Uk gynaecologist refused to offer laser saying that i needed a skinny vulvectomy & excision was on the menu . i did not listen to him and went back to my consultant in France who said he must have been joking and that mutilation(excision) was not necessary.I went through 2 laser surgeries again.  Extremely painful but well worth it as the vulva comes back so much better and a lot of the itching disappears. I had 3 biopsies and none of them shown cancer.I hope I will not die of this before my children grow up. I have a 4% chance of dying of it so I  have a Big chance of surviving. I have learned to live with it but is had blighted my life at times. But still I bless every day which comes my way and feel like a survivor.  but more than anything else if you live in the uk don't take no as an answer for laser and go private in France.  Find the money somehow as the NHS will refuse to treat you with laser.  It is a money saving operation for them but it is not the best option for you ..nobody need vulva mutilation if it can be avoided

Healthierways Healthierways
(Inactive)

RE: I was diagnosed with VIN III

by Healthierways on Sun Jan 23, 2011 08:49 PM

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Hi

 

Consult a Naturopath to help you supplement so that your body can cope.

Healthierways Healthierways
(Inactive)

RE: I was diagnosed with VIN III

by Healthierways on Sun Jan 23, 2011 08:53 PM

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Find a health store and ask for natural unbleached sanitary pads and toilet paper - they will also have other good advice for you. It helps a lot as well as adding Vemma to your diet. Look for it on internet.

Clean your house of toxic cleaning products and stay clear of processed foods, sugar, etc. for you and your family. Drink plenty of water and teach your kids too. Eat as much raw foods as you can

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