Gamma knife

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Gamma knife

by chefnnails on Thu Mar 20, 2008 12:00 AM

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 I received radiotherapy/resection in 1998. Can I now be a candidate for gammaknife since it has been so long? Recurrence 06' non-operable oligoastrocytoma 3. Any info would be nice.

Chris 

RE: Gamma knife

by Ken_s on Fri Mar 21, 2008 12:00 AM

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You should put this question to your doctor.  Radiation exposure is a lifetime thing.  So you probably have already received the lifetime max (but check anyway).  That being said, I did a quick search for "gamma knife FAQ" and found this:

http://www.gammaknifesanantonio.com/faq/Index.asp#question4

It says that you can have gamma knife even though you've had radiation.  Good Luck!

RE: Gamma knife

by Smilie on Fri Mar 21, 2008 12:00 AM

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Gamma Knife is next for my mom (58yo, GBM resected 10/07, postrad/temodar, post round1 Temodar, with now a 6.1mm regrowth).  Here's a couple research articles:

www.aans.org/education/journal/neurosurgical/Apr06/20-4-17-0947.pdf

www.virtualtrials.com/duma2.pdf

If you google Gamma Knife, GBM or the like, you can look into tons more info as well :0)

Nikki

RE: Gamma knife

by cozymel on Fri Mar 21, 2008 12:00 AM

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Many doctors had told my husband he had already had the lifetime max.  It almost seems like a kneejerk reaction for them.  Then we found two docs at the proton radiation unit at MD Anderson who said that if 5 years or so had passed they would look at all the latest scans reports and other data, and consider radiation again. 

We never did this since it has not been 5 years yet, but just passing this along because if you ask your primary NO, they will probably say you have had the lifetime max already.  I would want other opinions before giving up on this. Particulary contact MD Anderson, the proton radiation (Dr Woo? and the head of the department, can't recall his name).  Our MD Anderson neuro oncologist also thought we could not have anymore, it was just these radiation guys who said in a private evaluation with us at a brain tumor patient conference in Houston, that they would consider it.

RE: Gamma knife

by clarejoanne on Mon Mar 24, 2008 12:00 AM

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Hi there

So sorry it has come back but great that you had peace 98-06 .... my mother's the same, she had hers resectioned and had full whack of radiotherapy in 1995 and it came back last year (they reckon it had been growing since 2003).  Hers is inoperable and they've only offered her chemo - well that's what we thought at first - but now they're offering radiotherapy too.  We thought that she wouldn't be able to have any more but looks like Gamma Knife is possibility now so she's going to the Royal Marsden to see the same man who gave her her radiotherapy 13 years ago!  By the way apparently it is best when you do radiotherapy and chemo in combination - it increases the efficacy tenfold.

Tell me more about yourself if you've time.

 Clare

RE: Gamma knife

by clarejoanne on Mon Mar 24, 2008 12:00 AM

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Ken I saw your reply to Chris. Thank you so much for the link, really useful.  My mum is in the same position as Chris so your reply helped me.

I believe from what I'm told by the radiologist and oncologist that it's true Gamma Knife can be used even after radiotherapy's already been used and also that if it's over 10 years they can look at other radiotherapy although I think Gamma Knife is by far the best.

Thanks

Clare

RE: Gamma knife

by Grandmomof7 on Tue Aug 16, 2011 10:47 AM

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My husband was diagnosed with GBM-4 in 2010, suregery to remove 95% of tumor in right Temporal Lobe, had 42 radiation treatments and Temodar (since July 2010, 7days on and 7days off), had Gammknife in Aug. and Nov. 2010. Started Avastin with his Temodar in Feb. 2011 and will be having Gammaknife tomorrow for a new tumor.

Our doctors have told us, each time another Gammaknife is done, more chance of damage to the brain.

RE: Gamma knife

by karynk on Tue Aug 16, 2011 11:13 AM

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Chris,

My husband had RT twice, once in 2001 and then again in 2009.  It wasn't gamma knife, as his tumor is too big.  He has the same tumor as you, AOA.  I would seek multiple opinions, as I am pretty sure that some RO would do more radiation on you.  Your side effects just go up.  My husband's tumor doesn't like RT, so that's about the only thing that stops it.

-Karyn

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