Could Ca125 be False Negative & Mass on Ovary

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Could Ca125 be False Negative & Mass on Ovary

by Deb401 on Fri Jun 17, 2005 12:00 AM

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Hi - I'm 37 yrs old and I recently had a full set of CAT scans as a follow up for something I had removed in my neck. The CT scans showed "bilateral adnexal cysts" so I went to see my gyn who sent me out for a pelvic TVS ultrasound - The results showed a complex cyst on my right ovary and a left adnexal echogenic MASS measuring 4.6cmx3.1x4.3cm- it said the findings are suggestive of a dermoid but tumors could not be excluded with certainty based upon the appearance of the adnexal lesions. My CA125 was 8.4 which I see is normal - I'm wondering if it's possible to have a low number but really have an early stage of ovarian cancer? The report also suggests possible follow up with MRI - what could an MRI tell that would be different from the CT scan or the ultrasound? My mother has history of endometrial and colon cancer so I am always concerned about getting cancer..any advice on how I should proceed is appreciated - Also would a laparoscopy or a laparatomy be used in this case? (I did have 2 c-sections in the past) Thanks Debbie

Ca125

by Barbandover on Fri Jul 22, 2005 12:00 AM

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I had a normal ca125 after they spotted a mass on one of my ovaries. Since my CA125 was normal, they wanted to wait 6-8 weeks to see if the mass went away. After about 6 weeks, I went to see my old gynecologist and did a scan. My mass was bigger so I had the one ovary taken out but was assured it probably wasnt' cancer. Several weeks later, I was told it was cancer. I then had the 'rest' taken out. It turned out my other ovary had cancer also. But in a nutshell, my ca125 was normal throughout the whole ordeal. Good luck and don't wait.

Ca125

by Deb401 on Mon Jul 25, 2005 12:00 AM

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Thanks for responding- I'm not sure if it quite reassured me. I am already scheduled for surgery in August - I believe it's scheduled for a bilateral salpingo oopherectomy which is removal of the tubes and ovaries - I have a cyst on my right and a complex cyst and a mass on my left. I don't think they will know what they will take out until they go in and see what's doing. Can I ask you - did you have a laparascopy or a laparatomy? My dr said he will try a laparoscopy but may have to convert to a laparatomy depending how much scar tissue there is(I had 2 c-sections) or what they find so I'm very unsettled by the fact that I will go under anesthsia and not know what's being done till I wake up.

RE: Ca125

by Kelly1021 on Sat Feb 04, 2017 05:22 PM

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I just came across your thread here and I wonder how things turned out?  I was just diagnosed with complex ovarian tumor and my CA 125 is 25 (norm at my lab is up to 30).  

Thanks

RE: Could Ca125 be False Negative & Mass on Ovary

by tmpage on Mon Jul 15, 2019 03:23 AM

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I have lynch syndrome and I have had colon cancer 2ce and this past week I had my ovaries removed in which one had cancer.   When I had colon cancer, both times, my CEA tumor maker showed normal.  Also, this past month I had a CA 125 done when they found a legion on my ovary and it too showed normal.  My Vanderbilt Dr was shocked when she found that I had cancer after she removed the ovary.  I am just thankful they took the percautions during the removal as if I could have cancer and they think they got all the cancer in that area. I will have to go through scans in comming weeks to make sure I do not have cancer anywhere else, and probably have to have chemo.  Do not trust tumor maker tests,  they are not 100% accurate.   

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