Looking For Clinical Trials

7 Posts | Page(s): 1 

Looking For Clinical Trials

by Hopefully on Mon Sep 26, 2005 12:00 AM

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Hello All, I have been on the board for about a month or so now and have got to know quite a few of you even if just by story and name. However, it still feels as if I know you and your loved ones. My question to any and all of you is this.... I have started looking into clinical trials for my mom (dx GBM 8/4/05) I have contacted Dr. Friedman at Duke and also contaced UMM (University of Maryland Medical School) where I read some very intersesting things about cancer research and clinial trials (www.umm.edu) However, there are so many articles to read online, I am feeling a bit lost. Can anyone recommend some more places to contact? I look forward to hearing from you and thank you in advance for taking the time. Only the best to you and your family, Dana

Trials

by Gbmfl on Mon Sep 26, 2005 12:00 AM

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There are a bunch of trials on virtualtrials.com. They depend on what stage you are at and if you had previous treatment. We (for my dad) will not try anything until Temodar is over. We are checking them out now. He is just starting the post radiation Temodar tonight.

Virtualtrails( Temadar)

by Hopefully on Mon Sep 26, 2005 12:00 AM

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Thank you very much I learned about that website a while ago.... i hope you get more out or it take care dana

Hopefully

by Garland on Wed Sep 28, 2005 12:00 AM

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Sorry i don't have the details but i will get them later today...Univ of Alabama-Birmingham is a great resource and are working on Sulfasalazine (sp) now. Did you talk to duke about the "smart medicines" (molecular targeted therapies) in the newsletter? I'm on one of those with temodar now as a trial. None of us know how long our bodies will accept Temodar and it might be good to have another car in the garage.

Duke

by Gbmfl on Wed Sep 28, 2005 12:00 AM

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gene, we just sent dad's stuff off to Dr. Friedman at Duke today. I chatted with him on the phone and he is going to take a look at his stuff. he has been tired from the high dose of temodar and having bad headaches. he has not been sick yet but has felt a little sick to his stomach. But he's still eating. Just resting alot. Did you get bad headaches?

Duke

by Hopefully on Wed Sep 28, 2005 12:00 AM

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Hi Gene, I haven't really talked Dr Freidman about much more than what I need to gather in so much as background info about my mom. He was very kind and let me know right away he remembered my mother from when she was deciding where to have her surgery. I will ask about these "smart meds" the next time we talk. My mom has had no ill effects from rdx or Temodar nor has she experienced hair loss. Somtimes I think the Docs made a mistake in diagnosis( wishful thinking) but I tell you, she is doing great! I thank you for the info that Temodar dosen't work forever, I really didn't know. All the best to you and yours, Dana

Gbmfl

by Garland on Wed Sep 28, 2005 12:00 AM

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i was dx in even 03/05 (malignant inoperable) and it was a headache that drove me to the ER. it was sickening and i have never had a headache like it before in my life. as a matter of fact, i never had headaches before and hardly ever took any kind of medication. i was a runner (mostly 10K) and worked out regularly at the gym. I have not had a headache since my dx and wouldn't even know i was sick if they hadn't told me. so, this alien has no preferences to whom it attacks. i tolerated the temodar w/o any side effects and now i am in a clinical trial with 35 others taking temodar and gleevec in order to find the result of combination therapy and the result of molecularly targeted therapies. (Read about these in the braintumor.org newsletter). I get another mri on 10/28 and i am excited for all of us...this is gonna be good. you'll love duke and i hope your dad feels better. tell him to hang in there it gets better.
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